About Me

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I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.

Thursday, October 19, 2017

Headed to DC!

Last week I was contacted about attending a press event to help increase awareness about the access to prosthetics. I immediately accepted the invitation without thinking about who was going to watch Timmy in my absence. It wasn't until I hung up the phone that I began to panic about daycare. I knew that it was important for me to attend, and I didn't want to risk losing the invitation while I secured Timmy care so I took a leap of faith that I would figure it out. 

Thankfully Scott, who supports all of my advocacy efforts, was able to take the day off of work without difficulty.  He hasn't missed any days this year and was in need of a mental health day, so my needing back up turned out to be the perfect excuse to take personal leave. He and Timmy are going to play outside, go to lunch and probably visit the train section of the toy store while I'm in DC. I'm sure that they will both have a great day. 

Despite Robby's pleas, his schedule will remain unchanged today. He tried to convince us that he needed to stay home to "help" his Daddy take care of Timmy. While I applaud his efforts, he was vetoed. He's going to school regardless of who is home with his brother.  

While Scott and Timmy are busy playing and Robby is in school, I'll be in DC trying to bring a voice to the issues impacting so many in the limb loss community. I'm both nervous and excited about this opportunity. Hopefully I will represent well!  Please wish me luck, and I'll report back tomorrow.  

Wednesday, October 18, 2017

Farm Fun

With the exception of the damn hickory nuts and the shock of putting on an ice cold liner in the morning, I am loving the cooler temperatures. Yesterday Timmy and I spent the entire day at the farm, playing and exploring. He was nonstop energy, running between activities and relishing my undivided attention. Getting up early to work is difficult, especially when I'm warm in bed and tired, but the payoff of being able to play without distractions makes it worth the sacrifice. When the weather forces us inside again I'm sure I can go back to a more normal work schedule, but for now I'm going to try to stick to getting up early. 

At the farm yesterday I noticed that it was easier to keep up with Timmy. I've been working out every school day (with the exception of my sick days) and I think I can finally tell a difference. The scale is dipping, but more importantly my stamina is increasing. I love being able to play, run and jump without becoming winded and wishing for a break. I still have a long way to go, but I feel like I am on the path to becoming the type of mom that my kids deserve.   

Not only do I have more energy, but my leg is fitting better. I no longer have to stop every few steps to readjust my socket, and the pesky sores that have been omnipresent for the past two years are slowly fading away. At this point I no longer care what the scale says because the increased energy and a better fitting prosthesis make the effort worthwhile.  

Tuesday, October 17, 2017

Fun Day Play Day

Timmy and I had a fantastic Monday. It didn't start strong with my being awoken at 4 by my little cherub faced alarm clock. Even though I was miserable pulling myself out of bed and putting on my ice cold liner (welcome to cooler temperatures), I made the decision to make the best of the situation. While Timmy happily played with his trains and watched Mickey Mouse on television, I pulled out my computer and began to work. By the time Scott was leaving for school, I had knocked just about everything off my to-do list, freeing me up to play for the rest of the day.

After we dropped Robby at school, Timmy and I headed to an indoor playground. He ran, climbed, swung and jumped for almost three hours. He squealed with laughter playing with new friends and I found myself giggling along when I joined the fun. By the time we were ready to leave, we were both sweaty, winded and smiling from ear to ear. 

We came home for lunch, to rest for a bit and for me to get a little bit more work done. After a few hours we were ready to go pick up Robby from school to ferry him to the gym for his "gamer's fitness" class.  While Robby was playing at the gym, Timmy and I decided to make the most of the gorgeous weather by spending the hour at the park.

I love days when I can completely disconnect, unwind and just have fun with Timmy. I know all too well that he will be grown up before I am ready, and I need to make the most of these opportunities. I don't like getting up early, but in this case the payoff was worth the sacrifice. I am going to try to use my morning times productively so I can have more free time to explore and play with my kids. It's good for them, and it is most certainly good for me as well!

Monday, October 16, 2017

Squeaking and Slides

After more than a week of batting the family virus between people, I am hoping that we have finally eradicated it for good. Timmy's fever broke Saturday morning, and he has quickly rebounded and has been full of energy.  My ear is no longer painful and the ringing is becoming more of a nuisance reminder instead of the nagging frustration from last week.  Robby spent the weekend without a fever and Scott has still not been impacted by the family plague. 

With Timmy feeling stronger and chomping at the bit to release some energy, yesterday afternoon I took Timmy on some errands. As we were driving I noticed a pumpkin stand on the side of the road. The farmers set up a variety of moon bounce houses and slides, enticing anybody with young kids off the main road and into their parking lot.  With Timmy feeling well and the sky a beautiful blue, I couldn't think of a reason to say no so I turned the car around so that we could play for a few hours. He was ecstatic with his good fortune!

He jumped, ran and slid for nearly two hours. I was astounded that a little boy who had been so sick last week was now so strong and healthy. He went up and down the ginormous inflatable slide a total of 48 times. That's a lot of climbing for little legs! By the time we were ready to leave he was a sweaty, red faced and dirty mess. He was also smiling from ear-to-ear as he fell asleep in his car seat during the quick drive home.  

I didn't go down the slide with him, but I did enjoy some time in the bounce houses and on the jump pad. When there weren't many kids around I joined him to jump and play, bailing from the structure as soon as others arrived. I didn't bounce nearly as much as him, but I was both winded and sweaty by the end of our impromptu roadside adventure.  

Unfortunately I think I did something to my prosthetic foot when I was jumping because now I squeak with every step. It isn't a squeak from the foot shell, which has happened before and is a relatively easy fix. I took my leg apart and I can't stop the sound. In fact, I think my attempts might have made the squeak louder.

Last night I was walking through the hallway and I saw the cat across the room, with her tail straight up and preparing to pounce. I thought she was going after a bug. It wasn't until I felt her jumping into my socket that I realized she was stalking my squeaky foot.(Thank goodness for my carbon fiber socket because I was spared from the claws.) She either thinks my foot is a mouse or a toy. Either way when the cat starts to attack the sound, it is time to get it fixed!

Friday, October 13, 2017

Sick Timmy

It seems that the family virus has now stopped on Timmy. He was playing happily throughout the morning and afternoon but suddenly stopped and asked me to leave the playground. He fell sound asleep during the drive home, and when I carried him into the house I noticed that he felt warm. He spent the remainder of the afternoon and evening on the couch, sleeping and hot from a fever.

I worry more about Timmy's ability to fight off and to rebound from an infection.  Whereas Robby tends to bounce back quickly, Timmy has a hard time fighting back when he becomes sick. His immune system is still not as strong as it should be for his age. He tends to become sick quicker and suffer more severe symptoms which last longer than they would in a "typical" child. 

His high fever coupled with his lethargic affect worried us so I slept in his room last night. It is too generous to describe our activity as sleeping though because neither of us rested well.  Today, and probably much of the weekend, will be spent pushing liquids and cuddling on the couch. I feel so helpless when he is sick!

Thursday, October 12, 2017

Drop-In Play

Even though my ear was ouchy and I wasn't feeling my best, I could tell that Timmy was in desperate need for an outlet for his boundless energy. Instead of using my somewhat limited energy reserves being a playmate, I decided that it was the perfect occasion to cash in a Groupon I've been saving. (I had been saving the Groupon for an emergency and I figured my being sick and desperate for a break met the self-imposed qualifications.) So after dropping Robby off at school, Timmy and I headed to drop-in preschool.  

Because Timmy isn't officially enrolled in the preschool program, I was required to stay nearby which was actually my preference because I don't like leaving him with strangers. Even though he was in a new situation he melded in with the class quickly. After a few weary minutes he was busy playing, climbing and jumping with his new friends. I was glad that I was expected to stay because I was able to hear his peels of belly laughs and giggles as he chased his new playmates around the "garage." 

Before I knew it Timmy was playing tag, bouncing basketballs and riding a balance bike. He mounted the bike and took off with a confidence that led the teacher to believe that he has one at home. She was even more impressed when she learned that he had never before been on a bike. I guess Santa has something to add to his list because he certainly enjoyed tooling around the room.
He had a fantastic time playing with the young classmates, and I was able to sit back and watch him having fun. This Groupon paid for itself in spades, and we will definitely take advantage of this program in the future. The playmates and stimulation are good for him, and the break is most definitely good for me!

Wednesday, October 11, 2017

Ruptured ear drum

Earlier this week I wrote that I was feeling better. It seems that I was overly optimistic with my declaration of health. Yesterday my ear pain returned, prompting another visit to the doctor.  My left ear is now clear and healthy, but my right ear drum has ruptured. Ouch! No wonder it hurts so intensely.

I am frustrated by the nagging discomfort, and aggravated that I don't have more energy. I realize that in the grand scheme of things my issues are minor, but that knowledge does little to stop the nearly constant ear pain I've been experiencing. Appreciating that I am not in a more precarious health situation does not negate the way that I am feeling right now, and at this moment I feel sick.

I am on a stronger round of antibiotics coupled with a new type of ear drop. Between the medication and time, soon I will again be on the mend. In the meantime I'm nursing an ear ache while feeling sorry for myself. I figured I am entitled to a mini pity-party, even if I am the only guest invited.