I should know better than to consider any plans to be definitive. When a baby is involved, plans can change in an
instant. I was expecting Timmy to come home yesterday. My Mom and I had
the schedule worked out, and we were all chomping at the bit to welcome
our little guy home. Unfortunately, Timmy developed a fever and everything
changed.
Wednesday morning my Mom phoned and let me know that
Timmy had a fever. As the day progressed his temperature continued to
rise despite regular dosing of Tylenol. By the time evening set in my
Mom was en route to Urgent Care. Being away from him during his first
illness can only be defined as tortuous.
My Mom, recognizing my
growing panic, had the foresight to conference me into the room when
Timmy was examined. I was able to communicate directly with the doctor,
which certainly helped to set my mind at ease. Even though I couldn't
physically with him, I felt better simply knowing that I was in the loop
and involved.
The doctor seemed confident in her diagnosis of
Roseola, a common childhood virus. Although I wanted to trust her, I
called Timmy's pediatrician to inform her about the situation and
diagnosis. I was proud of myself for remaining so calm and composed, despite my racing heart and frantic thoughts.
I was delighted when she called me back, almost as soon as I finished leaving the message. Deliberately trying to sound
reassuring, she began to calmly speak.
"Mrs. Chenoweth, you need
to take a deep breath and remember to breathe. Timothy is going to be
okay. Please, I know that you are upset that you can't be with him, but
breath and stay calm." I felt that her constant reassurance was odd
considering that I really thought I was calm. Apparently I was not
nearly as stoic as I envisioned!
Timmy is still at my Mom's house and
will come home as soon as his fever dissipates. I know that he is in
great hands, but I selfishly want him home with me. I want to be the one
rocking him and providing the comfort he needs right now. Yes, I
suppose I am struggling with the omnipresent Mom guilt again.
With
Timmy convalescing with my Mom, the miles seem to have grown
exponentially. I've been left to sit and fret. I knew I had to get my
anxiety in check when I tried to get a mug for my coffee and my neck
went into an intense spasm. I spent the rest of the day alternating the
heating pad from my stomach to my neck. I can't help but feel that my
body is betraying me.
Thankfully, Timmy is continuing to improve. It is
amazing how quickly little ones bounce back! I'm hopeful that he will
return home in the next few days. Today I have an appointment with my
surgeon to go over both my post-op progress and my biopsy results.
Hopefully I'll hear good news on all accounts, and my life (and neck)
can return to normal!
About Me
- Peggy
- I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.
Friday, August 29, 2014
Thursday, August 28, 2014
Reunited
Timmy is coming home home! I have missed my little buddy so much during the past few
days. Although he doesn't freely admit it, when asked he still claims
to "not be a big fan" of his baby brother, but I know that Robby has
also missed him. My bet is that he sneaks him a kiss when he doesn't
think we're looking.
My Mom is staying on for a few days to help with Timmy while we gauge my recovery. I am so fortunate that she is willing and able to help me out this summer. She has never missed a beat in her support and encouragement.
I go to the surgeon tomorrow and I am eagerly anticipating answers! Although I've tried to avoid thinking about the pathology report, I am ready to learn the results. I must confess that I'm nervous, teetering on terrified.
Living in limbo is difficult! I'm expecting good news, but am prepared to face whatever I might encounter. Until I hear something definitive and to the contrary, I am choosing to believe that everything is just fine. When I feel weak and scared I think about my boys. They both remind me that I'm a fighter, and that I can handle more than I realize.
In the meantime, I am going to cuddle and rock my little teether. I can't wait to hold him and see his sweet little face. I may not be able to pick him up and carry him around, but I am certainly healed enough to assume my position in the rocking chair.
My Mom is staying on for a few days to help with Timmy while we gauge my recovery. I am so fortunate that she is willing and able to help me out this summer. She has never missed a beat in her support and encouragement.
I go to the surgeon tomorrow and I am eagerly anticipating answers! Although I've tried to avoid thinking about the pathology report, I am ready to learn the results. I must confess that I'm nervous, teetering on terrified.
Living in limbo is difficult! I'm expecting good news, but am prepared to face whatever I might encounter. Until I hear something definitive and to the contrary, I am choosing to believe that everything is just fine. When I feel weak and scared I think about my boys. They both remind me that I'm a fighter, and that I can handle more than I realize.
In the meantime, I am going to cuddle and rock my little teether. I can't wait to hold him and see his sweet little face. I may not be able to pick him up and carry him around, but I am certainly healed enough to assume my position in the rocking chair.
Wednesday, August 27, 2014
Home Alone
The house is eerily quiet without Timmy and Scott. In some ways being
alone with Robby is oddly reassuring. I suppose it reminds me of all the
years it was just the two of us during the day, playing and learning
together. Please don't get me wrong; I still miss Timmy terribly and I
can't wait until he comes home. But in the meantime while I'm healing, I
am going to try to enjoy rekindling the special bond I have with Robby.
Contrary
to Scott's predictions, Robby has not wallowed away the time playing
XBox and watching gaming videos on YouTube. Instead, we have been
playing UNO and other quiet games. He has crafted and performed little
plays, utilizing his turtle collection as both props and characters. We
have spent hours just talking, sometimes about a specific topic but many
times just sharing ideas and random thoughts. I have been reminded of
his humor, compassion and ambitions during our quiet afternoons
together.
Robby wants to change the world, starting
with my prosthetics. Remembering the difficulties I have climbing up the
narrow stairs for the water slides, he has carefully sketched what he
perceives to be the perfect leg. I have no doubt that his
walk/run/climb/swim leg will revolutionize the industry!
After
solving my prosthetic woes, he plans on becoming an archaeologist, gold
miner and ice cream store owner. Rest assured, he has not abandoned his
aspirations to make his own moonshine. He plans on taking up the craft
as a hobby as soon as he is allowed to use the tools to build his own
still.
In a few short days he will be back in
school, and Timmy will become my afternoon buddy. Although I hate that I
am recovering from surgery, I am beginning to feel thankful for these
quiet hours with Robby. He is growing up so quickly. I need to remember
to continue to carve out quiet time, not necessarily for an adventure,
but just to talk and hang out. If there is a silver lining behind my
surgical summer, it is most certainly the quiet time spent together.
Tuesday, August 26, 2014
Quiet Healing
Despite my visceral overreaction to sending Timmy to his Nana's house,
removing the stress and temptations that stem from wanting to take care
of him has been a godsend. I miss him terribly, but the constant guilt I
felt about not being able to pick him up or carry him has been
eliminated. I have been able to sit with the heating pad on my stomach
and heal, which is precisely what I need to be doing right now.
Timmy
is both safe and happy, enjoying visiting his Nana and being spoiled by
everybody in the house. I Skype with him a few times a day, not because
I think he needs to see me but because I need to see his little face.
If my Mom is tired of anything it is probably my pestering her about
him. She hasn't refused to answer my calls- yet.
With
Scott being busy with back to school meetings all week, the house is
quiet with just Robby and me. My little Koopa has enthusiastically
assumed the role of helper, providing me with a near constant flow of
tea, cookies and crackers. I know that I have said this before, but I
couldn't ask for a better helper.
I think that these
quiet days are precisely what I need to regroup and heal. Having
somebody simply stay here and take care of Timmy, although much
appreciated, wouldn't be as beneficial. I am too tempted to pick him up
and feel guilty watching somebody else care for him. I needed to have
the impulse to pick him up, even once, removed completely or I would
have ended up hurting myself and delaying my recovery. My mom, who
perhaps knows my tendencies best, knew that I would recover quicker if
the Mommy temptation was removed.
I understand that
this family decision has been upsetting for some, so I wanted to take
this opportunity to clarify our intentions. We are not trying to exclude
anybody from participating in our lives. Instead, I am doing the best I
can to survive what has turned into the most difficult summer of my
life.
At this moment in time, Timmy is where we need
him to be so that I can heal. This isn't because we lack offers of
in-home help, but rather because I do not want to contend with the
overwhelming feelings of guilt and frustration that arise from not being
able to help with the simplest of tasks. Any insinuation to the
contrary is simply incorrect.
I want to take this opportunity to thank everybody for supporting us through our difficult summer. We have been living in Survival Mode for the past few months, but the patient and selfless understanding that our family and friends have bestowed has made a world of difference. We are blessed to have such a strong support system.
I want to take this opportunity to thank everybody for supporting us through our difficult summer. We have been living in Survival Mode for the past few months, but the patient and selfless understanding that our family and friends have bestowed has made a world of difference. We are blessed to have such a strong support system.
Monday, August 25, 2014
Crying
Between
the pain and the medication prescribed to alleviate it, the past
weekend is a blur. I can get around the house, but moving is both slow
and deliberate. Not being able to bend, twist or lift anything has
certainly impacted my ability to do much of anything productive.
My
mom had been at our house since Wednesday afternoon. While I wish that
she could have stayed longer, I know that she has things that she needs
to get done at home. We are very similar in respect to relishing routine
and home. I know that she was missing her bed, and perhaps more
importantly, her puppies. It would have been selfish to ask her to stay,
although I'm sure she would have if I had asked.
Because
I can't lift or bend, I am virtually useless caring for Timmy. Scott
returns to work full-time today leaving us with few viable options.
Timmy is enjoying an extended sleepover with his Nana. I know that he is
being spoiled and loved, but my heart aches that I am not the one who
is caring for him.
I hate not being able to take care
of Timmy! I realize that the recovery is temporary, but sending him away
makes me feel like a maternal failure. I should be the one taking care
of him, and I detest the fact that I am unable to do so right now.
I
spent the majority of yesterday sobbing after watching my mom and Timmy
drive away. I felt foolish crying so hard, but I simply couldn't stop
the tears from flowing. I would blame my overreaction on my new found
menopause, but I suspect that it is too early to make that a viable
culprit. I think it was more a result of exhaustion and my fragile
emotional state.
Unfortunately, crying after major
abdominal surgery is not advantageous to comfort or healing. The harder I
cried, the more I hurt, and the pain simply made me more upset. I dove
deep into the disastrous abyss of self-pity, and the only thing I could
do was fall asleep and try to claw my way back to reality.
Thank
goodness for Skype! I am sure I drove my mom to the brink, but I might
have pestered her to video chat with my little guy. He seemed
unimpressed by seeing me, but watching him play did wonders for me!
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