Happy Friday!
The weather is supposed to be beautiful, and I'm
gearing up for a relaxing albeit busy weekend. It will be spent working
on the wood strewn through our front yard. In just a few short hours
after work, Scott has made an impressive dent on the project. I am
hopeful that we might actually have everything cleared and chopped by
the time we need to return the splitter. Of course, my husband's
weekends are typically reserved for football watching, so I'm not
entirely convinced that Scott will attack the splitting with the same
gusto.
I haven't been able to help with the heavy work, not
because I'm not physically able but because I am running around the yard
after Timmy. He loves to be in the middle of the action, but splitting
logs is not exactly safe for a toddler. He is easily distracted but
requires constant attention so that he doesn't wander or eat an acorn.
(I am beginning to think that he is part squirrel when I think of his
affinity for popping acorns and hickory nuts in his cheeks.) While
Robby, Scott, and Mr. Bill are busy chopping and splitting, I am on the
move after the youngest helper.
Hopefully by the time we go to
Trunk-or-Treat on Sunday evening the yard will be cleared of all the
wood, and our firewood pile will be stacked and ready for winter. I'm
looking forward to being able to walk through our front yard without
having to navigate the minefield of limbs, tree sections and divots. It
will be nice to look out the front window without feeling overwhelmed by
the woody mess!
About Me
- Peggy
- I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.
Friday, October 23, 2015
Thursday, October 22, 2015
Lackluster Response
Last Friday the White House finally responded to our We the People petition.
The response was lacking in content and, considering that it was
released after hours on a Friday night, had the air of being
intentionally buried. The administration really didn't need to bury
their response; It certainly didn't say anything that could be construed
as controversial. In fact, it didn't say anything of consequence!
I was simultaneously heartbroken and angry when I read the response. Reading the non-committal recap of the issues instead of the response to the proposal that was requested, I wanted to cry. I felt like I had wasted my entire August working to secure signatures on a futile petition.
After a few days and multiple conversations with those whom I respect in the field, I have been able to gain perspective. The statement released by the White House was labeled as the "initial response," and it was indicated that more information would be forthcoming. Those who are working the political side of this issue believe that there are a lot of backroom discussions concerning the proposal and that the fight has not been in vain. The White House felt obligated to provide a response but was not yet prepared to address the specifics.
I took the lack of content as a failure, but it could be a victory. While it is frustrating to continue to wait, the fact that more information was promised is an encouraging sign. It means that access to quality prosthetic care is being examined by the highest levels of our government. My optimism about our success is starting to return.
While I'm feeling more hopeful about the Medicare proposal being rescinded or modified, our battle is not yet over. Private insurers are already beginning to adopt the detrimental aspects into their policies. As of October 1, UnitedHealth Care has stopped covering prosthetic vacuum systems. They cite the lack of medical evidence as the reason, but privately they attribute the decision to the Medicare proposal. I fear that this is just the beginning of the cascading impact of this proposal.
Dave and I recorded a podcast about the issue and are encouraging everybody to tweet @AskUHC, which is the official customer service handle for United Healthcare. Please ask them why they are limiting prosthetic care for customers. Don't forget to use the #NotALuxury hashtag so that we can trace and retweet these queries. We need to flood United Healthcare with polite inquiries and concerns so that we can increase public awareness. Let's continue to make a difference on this issue!
powered by podcast garden
I was simultaneously heartbroken and angry when I read the response. Reading the non-committal recap of the issues instead of the response to the proposal that was requested, I wanted to cry. I felt like I had wasted my entire August working to secure signatures on a futile petition.
After a few days and multiple conversations with those whom I respect in the field, I have been able to gain perspective. The statement released by the White House was labeled as the "initial response," and it was indicated that more information would be forthcoming. Those who are working the political side of this issue believe that there are a lot of backroom discussions concerning the proposal and that the fight has not been in vain. The White House felt obligated to provide a response but was not yet prepared to address the specifics.
I took the lack of content as a failure, but it could be a victory. While it is frustrating to continue to wait, the fact that more information was promised is an encouraging sign. It means that access to quality prosthetic care is being examined by the highest levels of our government. My optimism about our success is starting to return.
While I'm feeling more hopeful about the Medicare proposal being rescinded or modified, our battle is not yet over. Private insurers are already beginning to adopt the detrimental aspects into their policies. As of October 1, UnitedHealth Care has stopped covering prosthetic vacuum systems. They cite the lack of medical evidence as the reason, but privately they attribute the decision to the Medicare proposal. I fear that this is just the beginning of the cascading impact of this proposal.
Dave and I recorded a podcast about the issue and are encouraging everybody to tweet @AskUHC, which is the official customer service handle for United Healthcare. Please ask them why they are limiting prosthetic care for customers. Don't forget to use the #NotALuxury hashtag so that we can trace and retweet these queries. We need to flood United Healthcare with polite inquiries and concerns so that we can increase public awareness. Let's continue to make a difference on this issue!
powered by podcast garden
Wednesday, October 21, 2015
LumberJacks
We never made it to the farm yesterday. The stars finally aligned, and
Timmy ended up taking a substantial nap. I decided that it would be more
beneficial (for both of us) to allow him to sleep rather than wake him
up and schlep him outside to play. I am amazed by the amount of work
that I can accomplish during a few hours of quiet!
Of
course, every action has a consequence. Timmy had a lengthy nap in the
afternoon, resulting in his sleeping poorly last night. He woke up at 3
AM. Although I was able to get him back to bed around 4, he was restless
and awake (hence keeping me awake) until I finally surrendered and
released him from his crib at 5. The benefits I reaped yesterday were
wiped out by one long night.
Somehow I have to tap
into my energy reserves by the time Scott gets home from work. We rented
a long splitter and need to clean up the yard. We have the machine for a
week, but the amount of wood is overwhelming, and I'm beginning to
worry that 7 days won't be long enough. I know that I have to stay
motivated and moving because if I relax, the project will never be
completed. I don't want to be a nag, but I also don't want to be out the
money for the rental and a yard still cluttered with wood.
I'm
still dealing with the sores on my leg. They continue to be painful but
are not worsening, so I'm slightly optimistic that I am on the mend.
I'm going to the doctor this afternoon to have him check it, and I
wouldn't be surprised if I end up with antibiotics. I hate taking pills
when they aren't necessary, but the sores have been oozing puss for a
few days, and I think it is time to be aggressive. I've been dealing
with this issue for a few weeks and I have exhausted all non-medicinal
methods.
Because of the sores, I have to be careful
with how much I physically help with the log splitter. Rotating in my
socket tends to aggravate the area, which is exactly what I don't want
to do. A few years ago we would have been stuck, but now Scott has an
eager and capable assistant in Robby. (Before the lectures start, we
don't allow Robby to move or handle the logs. His job is limited to
lever control and to moving the small pieces to the pile after they have
been cut.)
With my older boys splitting wood, I
will be on Timmy duty. I'm sure he is going to want to be outside and
part of the action, which is going to clash with my keeping him a safe
distance away from the workers. I'm hoping that he becomes bored
watching the splitting and I will be able to occupy him with his
favorite outdoor activities--picking up nuts and throwing sticks into
the woods. Who knows, maybe all of the excitement will tire him out and
he'll sleep well past dawn.
Tuesday, October 20, 2015
Better Day
Much to screaming Timmy's chagrin, yesterday I took an extra long time
getting out of bed. I tried to block out the wailing of his discontent
as I slowly stretched and enjoyed being prone for a few brief moments. I
knew that it was going to be a long day, and I wanted to enjoy the
solitude as long as possible. Of course, solitude and a screaming
toddler don't mix well, so my efforts were short lived. I begrudgingly
put on my leg and prepared for the ensuing chaos of another Monday
morning.
Just as I predicted, it was constant movement
from the moment I picked him up in the morning until I fell into bed at
night. Between a near constant stream of work calls, projects with
converging due dates, and Timmy tantrums, I barely had time to grab a
quick snack for lunch. I hate those frantic mommy days when I feel like
I'm barely treading water. I always feel like I'm doing enough to stay
afloat but never enough to be really good at anything.
While
yesterday I was a good employee, I feel like I was a lousy Mom. I was
snappy and impatient with both boys. I know that everybody would have
been better off if I had just unplugged, put down the phone and played
for awhile. Unfortunately my schedule was demanding and my timelines
were pressing. Perhaps it was fatigue induced, but I went to bed
feeling like an utter failure. I tried my best to push the negative
thoughts out of my mind, but I definitely had a difficult time
decompressing and falling asleep.
Today my schedule
is less compact allowing me some much needed playtime. The weather is
supposed to be crisp and beautiful, so I think I may take Timmy for a
special mommy and me farm adventure. I think we could both use the break
from our normal routine. (Thankfully he is not yet verbal, so I don't
have to worry about him telling his big brother that we went to the farm
without him.) Today will be a better day!
Monday, October 19, 2015
IHOP Meltdown
Although still restricted to soft foods, Scott is slowly starting to
expand his post-surgical diet. He is beginning to slowly reintroduce
foods that can be easily eaten with minimal jaw movement. In essence, he
and Timmy are now on a similar diet. (Personally, I don't know how he
could tire of his milkshake and ice cream diet that has been his main
source of sustenance during the past week.) Yesterday, in an effort to
spice up his diet, he spontaneously invited us to join him for pancakes
at IHOP for dinner.
I knew that going to IHOP was a bad idea, not because I worried about Scott's ability to chew but because Hamlet was exhausted. He didn't take much of a nap (no surprise) and it was nearing his bedtime. Even though the restaurant was nearly empty, I was on edge fearing an appearance by Timmy the Terrible.
Timmy the Terrible made his entrance in grand style, shrieking at the top of his lungs as we were trying to put him into the high chair. The poor waiter didn't even pass out the menus and my little guy was screaming and trying to throw everything in his reach. He found playing with ice fleetingly amusing, but quickly tired of the game and returned to voicing his displeasure with blood curdling screams.
Within minutes of entering the restaurant I was leaving, wrestling to keep an irate toddler in my grasp. I strapped him into his car seat, turned up the radio and let him wail. When Scott emerged with his arms overflowing with to-go boxes, we agreed that we made a mistake. We will try to take him out to eat again- in about three or four years.
I knew that going to IHOP was a bad idea, not because I worried about Scott's ability to chew but because Hamlet was exhausted. He didn't take much of a nap (no surprise) and it was nearing his bedtime. Even though the restaurant was nearly empty, I was on edge fearing an appearance by Timmy the Terrible.
Timmy the Terrible made his entrance in grand style, shrieking at the top of his lungs as we were trying to put him into the high chair. The poor waiter didn't even pass out the menus and my little guy was screaming and trying to throw everything in his reach. He found playing with ice fleetingly amusing, but quickly tired of the game and returned to voicing his displeasure with blood curdling screams.
Within minutes of entering the restaurant I was leaving, wrestling to keep an irate toddler in my grasp. I strapped him into his car seat, turned up the radio and let him wail. When Scott emerged with his arms overflowing with to-go boxes, we agreed that we made a mistake. We will try to take him out to eat again- in about three or four years.
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