About Me

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I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.

Friday, August 12, 2016

NYC

I had an awesome time in NYC yesterday with my friend Tammy.  We have known each other for 24 years and, although we don't get together often, we always manage to have fun.  I wish that we lived closer to each other but, since we don't, we definitely need to make a point to get away more often. Not only is it good for me to escape my house full of boys every once in awhile, but it is probably beneficial for me to fill a role other than mother, wife or employee.  It's nice to remember that I have more to bring to the world than care taking. Sometimes spending time with a friend and laughing is just what is needed to recenter my life. 





Thursday, August 11, 2016

Adventures

Yesterday I decided to squeeze in one more Aunt Peggy Adventure before my niece and nephews return to their school schedule. (During the school year I rarely see them because they go to their Dad's house every weekend.) Wanting to end the summer with a fabulous memory, I pulled out my laptop and began to search for the perfect activity.  It didn't take me long to decide that we were going to the "Glow Party" at SkyZone.
Everybody (myself included) loves going to the trampoline park, so the idea of hopping under black lights sounded awesome. The kids were thrilled when they realized where we were going, and gobsmacked when they discovered that it was a Glow Party. Needless to say, I solidified my reign as World's Best Aunt/Momom.

Now it is time for one more mini adventure, but this one is reserved just for me.  Today I'm leaving my family behind as I hop the train to NYC. I love the city, filled with such energy and excitement. To make the trip even more monumental, my friend Tammy will be meeting me there.  I am only spending one night away, but it is sure to be memorable.  I am so excited I feel like a kid on Christmas eve. 

Wednesday, August 10, 2016

Happy Birthday #NotALuxury


It is hard to believe that the #NotALuxury movement is celebrating its first birthday. Last August was a flurry of phone calls, planning meetings and social media pushes as we tried to gain traction in the fight against the detrimental medicare proposals. I remember Dave being wary about gaining enough support to snag the requisite 100,000 petition signatures. Confident in our abilities to spread the word and secure the untapped advocacy potential of the limb loss community, I assured him that we would crush our goal.

#NotALuxury began slowly with a few tweets and Facebook posts, but it quickly morphed into an international movement. Social media was flooded with images and outcries of frustrations from amputees of all races, religions and economic backgrounds. To date, we are the ONLY disability oriented petition to ever reach the 100,000 signature requirement.  Not only did we meet the threshold for a response, but we did so in 17 days.

The White House responded and Medicare tabled their draft proposal. A committee of federal employees has been convened to review and to develop best practices for lower limb prosthetics. We won't know the results of these closed door meetings until a report is issued (no timeline has been provided.)  Right now the movement is relatively idle, but the community is empowered through our history of coming together.

Yesterday Dave and I recorded another episode of Amp'd, where we celebrated the #NotALuxury movement while taking a look ahead at potential outcomes and struggles.  Enjoy!



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Tuesday, August 09, 2016

Not a Shrinking Violet

I have become accustomed to people staring at me, especially during the summer when my prosthesis is exposed. Normally it doesn't bother me, and many times I don't even notice the attention. Every once in awhile the staring bothers me. Yesterday was one of those days. If it hadn't been in the 90's, I probably would have put on jeans just to blend in with everybody else.

I'm not sure why I was self-conscious yesterday, but I do know that the results were profound. Walking around the grocery store and trampoline park, I felt like an oddity in a circus sideshow. I caught every second glance, hushed whisper and look of shock as I went about the course of my day. I'm sure that I wasn't receiving more attention than usual, so the fact that it bothered me was weird. I'd blame it on hormones, but the hysterectomy two years ago squelched that excuse.

Hopefully yesterday's acute awareness was a fluke, and today I will resume my "you're staring at me because I'm awesome" attitude. I hate days where I have to feign confidence! I'm glad that those situations are rare, because I don't think I make a good shrinking violet.

Monday, August 08, 2016

Post-Vacation Relaxation

This past weekend we did nothing of any consequence, and it turns out to be exactly what we all needed.  After our Jellystone adventure, quickly followed by our beach getaway, it was nice to have a few days with nothing to do and nowhere to go. Well, it isn't exactly that I didn't have anything to do. Perhaps it would be more honest to admit that I chose relaxation and hanging out at the pool over housework and report writing.  I think we all needed a few days of calm after the fun chaos of the past two weeks.

It isn't often that I completely ignore both housework and projects in lieu of vegging out in front of the television and reading. I desperately needed to relax after our "vacation."  After all, I managed to maintain my work responsibilities and schedule on both getaways, which led to me feeling frazzled, stressed and exhausted.

Even Hamlet, who thoroughly enjoys traveling and adventures, was content to play quietly at home. We did go to the pool on both Saturday and Sunday, which was enough action to both satisfy and to tucker out our little guy. He was delighted (and surprised) that he has mastered staying upright in the pool while wearing his vest.  (I don't fully trust his abilities yet so I am always within reach in case he loses his balance.) He thoroughly enjoyed showing off his new swim skill to anybody and everybody who happened to look his way. 

Unfortunately my weekend off has come to an end with the beginning of another work week. I think I am going to lock myself in Scott's man cave this afternoon so that I can work uninterrupted. I love having my boys home, but their constant presence makes concentrating difficult.  Wish me luck!