Today
is a big day for me! I have been invited to provide testimony during a
Congressional hearing about access to prosthetics. I feel like I have
been working towards this moment for years, and I am both excited and
terrified about the coming hours.
Three amputees have
been asked to provide testimony during today's hearing. A representative
from the Boston Marathon bombings, an individual who was injured during
combat service, and me. Obviously, I am the token representative from
the civilian amputee community. We all have our own journey, but the
reality of the other two speakers is not typical for an amputee in this
country. While they have been provided with the best technology and
rehabilitation, most amputees are struggling to scrape together the
funds for the most basic of devices.
Almost every day I field emails from people from all over this country, desperate to get fitted with a prosthetic. Moms and Dads are relegated to living life in the sidelines, not because they lack intrinsic motivation to walk with a prosthesis but because they don't have the funds required to get one. I find myself far more disabled by my insurance policy than I am by the loss of my biological leg. I am both excited and honored to relay these stories in the hopes of starting a realistic dialog. I truly believe that it if the public knew of the real life struggles in the amputee community, change would result.
Despite being
nervous, I am going to do my best to provide a true life depiction of
the struggles of the "normal" amputee in this country. I have committed
hours of prep time to today's testimony. I know the issue and feel
confident that I can speak accurately, passionately and effectively
about the struggles faced by so many of my friends. I feel intimidated
by the responsibility, but not by the audience. There was a time I would
have been simultaneously awe struck and silenced by the prospect of
presenting to an elected official. The gravity of this issue has erased
any of these fears and has served to fuel my passion. I finally have an
audience with clout, and I have no intention of being quieted without
thoroughly depicting the hurdles encountered due to our lack of
insurance parity.
Almost every day I field emails from people from all over this country, desperate to get fitted with a prosthetic. Moms and Dads are relegated to living life in the sidelines, not because they lack intrinsic motivation to walk with a prosthesis but because they don't have the funds required to get one. I find myself far more disabled by my insurance policy than I am by the loss of my biological leg. I am both excited and honored to relay these stories in the hopes of starting a realistic dialog. I truly believe that it if the public knew of the real life struggles in the amputee community, change would result.
Stay tuned as the AmputeeMommy takes on Congress!
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