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I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.

Tuesday, November 03, 2015

We Did It!!

Friday morning I received news that left me absolutely overwhelmed with excitement. Although my first instinct was to log onto my blog to share, I knew that I needed to wait for the official announcement or risk being cut out of the information loop. I was assured that the announcement was imminent, so I eagerly refreshed my inbox and constantly checked my phone throughout the day.  By nightfall I finally received word that the announcement was being held until Monday morning because the powers-that-be didn't want to bury good news over the weekend. 

Yesterday, around 2 in the afternoon, the White House finally issued a follow-up response to our We the People petition.  In short, we won! Although the wording stopped short of using the term "rescind" the White House response indicates that the current draft policy will not be finalized. Instead, a "multidisciplinary Lower Limb Prostheses Interagency Workgroup" will be convened in 2016 to draft a policy that makes sense. Upon reading of the formation of this group I immediately reiterated my offer to serve on the committee. I am hopeful that they will include "real life" amputees in this workgroup, but the membership requirements was deliberately vague in the issued statements.

The statement did ensure that whatever the workgroup proposes will be subject to public response and input.  The opportunity for input was not guaranteed until this statement was released. Rest assured, I will closely monitor the situation and provide updates throughout the process.  Hopefully the new draft policy will be fiscally sound without restricting prosthetic care.  If it is lacking, I am fully prepared to respond.

Although I know that the battle to ensure quality prosthetic care for all amputees is far from over, today I will celebrate this victory.  The community rallied, and we were able to thwart Medicare from adopting an atrocious policy.  With professional groups, manufacturers and a small army of grassroots advocates working together, we were able to effect meaningful change. I am so incredibly proud to have been part of this effort!

1 comment:

  1. Congratulations on your success. We appreciate all the hard work you put into this initiative. You have given a voice to all amputees.