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I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.

Thursday, March 06, 2025

Timmy's First Protest

 Two weeks ago we learned through an email that the clinical protocols that Timmy has been enrolled in and following, the very treatments that has allowed him to regain his health and have moved him into remission, has been summarily shuddered by the republican administration.  Neither the researchers, his doctors, nor his parents were provided time or resources to prepare for this sudden change. Now my child has been thrown into medical peril so that Presidents Musk and Trump can appease the base.  I am devastated and disgusted that my own country would discard my child so callously.  

Timmy, upset about the sudden changes and fearful of what we really don't know, has been wanting action. I can't change President Musk and Trump's agenda, but I can force our local representative's staff to look into my child's eyes and explain why he is not worth funding. How does a man who touts himself to be pro-life, who poses with priests and nuns at every opportunity, reconcile canceling life-saving medical treatment for children?  In reality, and like the majority of MAGA republicans, they are actually pro-procreation, not pro-life. 

Today we are heading to the local offices for our representative and one of our senators. Do I expect it to change anything? Absolutely not. But Timmy deserves to see me fighting for him. Silence is normalizing the chaos of this administration. Ripping research away from sick kids is not normal. It just isn't. So today Timmy will attend his very first protest, and I couldn't be more proud. 

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