RISE UP

 

For every amputee who has ever felt like a number. This is for you. 

 

The government just announced an investigation that could lead to massive tariffs on prosthetics.

 

Let me translate what that really means for us.  What happens when the leg you walk on suddenly costs your prosthetist more to acquire than insurance will ever pay them?

 

Clinics close. Innovation STOPS. And we get left behind, fighting for outdated tech or facing impossible bills. As if battling insurance wasn't already a full-time job. 

 

So where is the outrage from the big patient organizations? Silence. 

Here’s the hard truth I’ve learned after two decades: The system isn't broken; it was built to work exactly this way.They don't tell you your 'local' clinic is secretly owned by a giant manufacturer. Why? Because you're not supposed to know who's really profiting from your body.  And the advocacy groups that claim to represent us? Their silence is deafening, bought and paid for by the same manufacturers writing their donation checks. 

 

To them, we're not people; we're purchase orders and patient quotas. Because of the incestuous relationship created when the manufacturer owns the clinician, the needs of the patient become secondary. They don't see our fight.

 

I'm done asking for a seat at their table. It’s time we build our own. 

I am creating a new channel for patient-led advocacy. No corporate cash. No hidden agendas. Just our voices, our power, our fight. We will share the information they hide and organize to protect our access to care.

Want in? Message me and follow this blog. I'll make sure you're on the list when we launch.

It’s time to rise up because we need to protect and empower ourselves. 

 

If you have read this far, thank you. I have heard this new venture described as AmputeeMommy gone Menopausal. Fairly apt description if it means I'm done dealing with the establishments.