Yesterday I received confirmation of news that, to be completely
honest, I knew but had been trying desperately to forget. Despite being
active and mobile, my limb is not faring well. My fears have been
affirmed, and I am going to have to have a major revision surgery in the
coming months.
It turns out that I have a trinity of
stump issues. I have a bone spur, a failed skin flap, and a splintering
distal tip. Apparently I like to do everything, including developing
limb issues, in a zealous fashion!
Repairing the distal
tip will be the most invasive procedure, requiring the removal of bone
and reassembly of the bone bridge. In essence I will be undergoing a
re-amputation. An amputation is definitely not an experience I am
excited to repeat.
True to Murphy's Law, the bone spur
is not located close to the distal end of my limb. Shaving it down will
require another significant incision. Pretty soon my stump will be
nothing but a series of scars.
While I am not happy
about the prospect of surgery, I know that it needs to be done, and I've
started the process of approval with my insurance adjustor. I have no
doubt that I will be required to appear in court and navigate through
another sea of useless red tape and heartless denials. Trying to obtain
approval will end up being as painful and frustrating as recovering from
the surgery itself.
I am saddened that I'm facing another
revision surgery, but right now I don't feel overwhelmed. I suspect
that I am not worried because I know that the process of approval will
take months. Although I know that I need the surgery now, in reality it
will probably not occur until August or September. I'll worry about the
pain and recovery when I have approval and a surgery date. Until then, I
think I'll just try to forget and enjoy my summer.
Peggy....
ReplyDeleteSean needed two revisons within 6 months of each other.... the thought of using a wheelchair in a school that thinks it is handicapped accessible but really isn't made him nervous.... then facing the fact, the school had no real plan to get him out of a building during a fire/fire drill if he did not have his legs on... even though we as parents were told they did and the plan was practiced... 3 weeks after his first surgery, Sean crawled down 3 flights of stairs on his knees while adults stood there trying to figure out how to get a 210 pound quad amputee downstairs without using an elevator.... long story short... after a lot of noise to the Powers to Be... every school in our district with multiple floors ( not just the school Sean attends) now has emergency evac chairs, and plans that are practiced quarterly.... Sean is a Mover and a Shaker... he makes people think.... Hang in there... you have a ton of friends to help you along the way.... Heck I may even come visit and bring cupcakes!!!