Separation

 Yesterday was our 21st wedding anniversary. Some years we celebrate by going out to dinner or making grand gestures, while other years we quietly wish each other a Happy Anniversary over whatever dinner I'm making that night. This year's celebration was laid back and relatively non-eventful.  After the year we have endured, quiet and calm was right up my alley!

Scott is halfway through his cardiac rehab program and I think we are beginning to settle into our new lifestyle. It has been quite an adjustment for everybody! I think that doctors and the entire medical establishment fails to acknowledge the impact of a cardiac event on the entire family unit. Of course, our medical system is not set up to care about people as individuals, so I suppose I shouldn't be surprised. 

Today Scott is going to venture to rehab by himself, which is a big step for both of us. He has been well enough to drive home after the sessions for several weeks, and my being there has become a crutch. If we are going to resume an somewhat normal lifestyle, we will need to separate at some point.  We are both a bit anxious but we realize it is time. 

Wish us luck!

 

Back Home

 This past week has been hot and exhausting. Scott's aunt was hospitalized and it seemed like a good opportunity for a visit with his mom. Scott hasn't been home since his heart attack and I know he has been struggling with feeling homesick. I've learned that it doesn't matter how old you are, you always want your mom when you don't feel well.  I was worried that the trip was going to be too much for him but the emotional needs overruled my concerns.

We borrowed my Mom's car which has fantastic air conditioning and more room. We split the drive and took frequent rests. Despite our efforts, Scott was not feeling well when we arrived in Ohio. The heat in the house certainly did not help. Although we had a small air conditioner delivered to Ohio, the house itself was often overwhelming with heat. When the living room heats up to 101, there is little that can be done to cool it down quickly and comfortably.

Our visit was quicker than normal because of the heat and Scott's cardio rehab appointments. Because of my health concerns for Scott the visit was more stressful than normal. But seeing Scott so relaxed with his mom made it all worth while.

That being said, I'm very happy to be home where every since room is habitable and cool.

 

Swimming

 This summer has been difficult, however watching Robby assume some of the 'entertainment' load for Timmy has been wonderful. Timmy loves doing anything that includes his big brother and Robby has been more than eager to lap up the adoration.  Last week the boys went to our little local water park twice. Seeing their sun-kissed cheeks walking through the door made my heart smile.

 The age difference between the boys has made entertaining both of them difficult. Breaking up summer boredom has become even more complicated by the hot temperatures and seemingly constant storms. I'm glad that we were able to break up the week and take full advantage of the non-rain hours.  When the boys aren't swimming together they are usually playing video games. Timmy has been working hard and practicing so that he can play with his brother during online games. The screams of attack plans and hoots of joy radiate through the house when they are playing.

Today is an off day for Scott's cardiac rehab.  He has officially reached the halfway point in the program. Hopefully soon everything won't feel as different and hard.  

Over analyzing

 Last week I struggled emotionally.  I found myself stuck in my own spiraling thoughts as I attempted to weave through nearly 2 decades of friendship to determine if it was built upon truth or manipulation. I tried to stop overthinking but I just got caught in the cycle of remembering, analyzing, and wondering.  Has this ever happened to you?

It is terribly painful to realize that a friendship that you have valued may not be perceived with the same esteem by your friend.  Overvaluing a friendship is one thing. But feeling like it may have been ultimately all a manipulation is something else entirely.  Let me tell you, this one really hurts.

On Saturday, overwhelmed by all of the feelings and emotions in my head, I did what I knew would help to recenter me. I went to visit my Mom. No matter how old I get, her hugs and her presence always recenter me.  It was a quick getaway, just one night because Scott has to resume cardio rehab this morning, but it was enough for me to feel normal, or at least as normal as possible again.  

Here's to a better week for everybody!

 

Veggie Slicer

The past few months have had a strong heart and health focus. Between managing medication and cardiac rehabilitation, this has definitely been the summer of focusing on Scott's health and needs. I have had to reform the way in which I cook, trying to focus on heart healthy foods while still making the kids happy. Needless to say, it has been a difficult balance.  

Many days I feel like a short order cook. The kids have been relatively low maintenance this summer and have not complained, but I still feel guilty about being tethered home instead of pursuing adventures. Because of my guilt, I'm compensating in the kitchen. We've developed a habit of my cooking separate meals for everybody in an attempt to make them happy. Unfortunately, it is running me ragged in the process.

In an attempt to simplify the seemingly endless cutting and chopping of veggies, we purchased a food slicer.  Excited to try it out, I called the kids into the kitchen to show them my new 'toy' and to talk to them about the need to ALWAYS use the food guard when slicing. Demonstrating with a tomato, I began to tell them how you should never slice a food without the guard because...

OUCH! Yep. I cut the tip of my thumb off while showing the kids.  The bleeding was significant and the bandage required for my thumb kept me from typing for nearly a week.  Hence the lack of blogs.

Needless to say, I don't think anybody will be using the new veggie slicer again anytime soon. 

Timmy's Great Adventure

 I know I promised to write today about my cousin Bobby. Although as I sat down to write this morning I find my eyes flooded with tears. Alas. I think I need to wait to share until my heart is a little less tender.  Instead, today I will share how Timmy spent his 4th of July. While ours was deliberately non-eventful, Timmy managed to cram in enough adventures for all of us.

On Wednesday, when I was feeling ill from the throws of Covid, grief, fear, exhaustion and anxiety, I broke down crying to my Mom. Timmy was bored and there wasn't anything I could do. Everybody else was having wonderful holiday adventures and we were stuck inside because I was too sick to do anything fun with him. I felt overwhelmed and I felt like I was failing as a Mom.

About an hour after venting I received a call. My Mom and my sister got together and came up with a plan. My Mom, who had arranged to go to a hotel on the 4th in anticipation of the Memorial Service, cancelled her room and started to set up "Camp Nana."  My sister drove down after work and picked up Timmy for his grand adventure.  I went back to bed, feeling grateful that I have such a wonderful family but still guilty about needing help.

I woke up on the 4th to a video from my Mom. Sheri and Timmy stopped for fireworks on the way home. At the end of her small street she let him hold long sparklers out of the top of the jeep while screaming "Happy Fourth of July." He was delighted, and I knew all was well. 

Early on the 4th my sister and Timmy woke up to a hearty breakfast before hiking the Appalachian Trail. Timmy adores hiking with Sheri and takes the opportunity to talk nonstop. Exhausted but proud, he was delighted to reach their summit for the day.  In the afternoon they went to a food truck rally because hiking the Appalachian Trail works up quite an appetite. They spent the evening at a neighborhood party, playing in the pool and eating a lot of popcicles.

As if the day were not fun enough, at night my nephew arrived (along with his friend) with a truckload of fireworks. Jared had originally planned to shoot off the fireworks at a later time but adjusted his plans because of Timmy. I really appreciate him doing that, and Timmy had a blast.

I may not have provided Timmy with a good holiday, but my family certainly did!

 

Covid for me

 Sigh.

Thank you for sticking with me.  Despite my best intentions, life continues to throw roadblocks into my plan of daily blogging.  Last Wednesday morning I woke up early- extremely ill.  I will spare you the details.  I have not been that ill in years.

Unable to get out of bed without intense vertigo and vomiting, I was miserable. Watching TV made me queasy. Reading and writing was not even on my radar. Thankfully, like Scott's experience with Covid, it was relatively short lived.  After two days of misery, I was out of bed. Fatigued and sore, but functional.

Thursday I remembered my Ampuversary, but I was too sick to care. The math confused me as I attempted to calculate my post-amputation year so I quickly gave up. I'll celebrate next year. 

I spent the 4th of July sleeping and resting. We did not celebrate the holiday this year. Honestly, there just doesn't feel like a lot to celebrate in our country right now. I don't think we deserved a parade and fireworks this year after passing such a detrimental bill targeted towards the disability community.  My heart breaks for the devastation that I fear is ahead.

On Saturday I was well enough to attend my cousin's memorial. I think I will pause this blog here.  He deserves his own post tomorrow.  

Bobby

 Sometimes a message comes through that changes the fabric of a family. Last week I received such a text. My beloved older cousin Bob- Bobby to his family- suffered a heart attack and suddenly died. I really don't have the words to process this loss.

Bobby was among my first heroes. He was raised by my grandparents so we saw him frequently when we were growing up. We were the loud and excited little kids who infringed on a teenagers space, toys and newly released video games. We thought he was the coolest person ever.

I had a chance to travel with Bobby as an adult. It was fun to redefine our relationship as adult cousins. I went to visit Bobby in Phoenix exactly one month before my foot was crushed. He was my last bi-ped adventure, and I will always cherish those memories.

My heart is broken. My mom's heart is shattered. Bobby held a special place in my heart, but he was her first nephew. Her first experience with the unconditional love that only an adult can feel for a child.  There is so much more I could write, but for now the words lay too heavy.

 

Scott has Covid

 This is definitely the season of the unexpected. 

Scott woke up early Wednesday complaining of a headache. After checking his bp and fever, we decided to run a Covid test. Surprise! He has Covid.

His other bouts with Covid have leaned towards the mild. This time, what Scott is experiencing reminds me more of the flu than a mild cold. He has been knocked down with a fever, cough and general malaise. Perhaps the most frustrating is that his completion of the cardio rehab program has been delayed because he must skip sessions while he is sick.

I know that missing a few sessions is not catastrophic, but it is certainly a frustration. I've been diligent about making sure that everything is on schedule and appropriate to set Scott up for the best chance for recovery from the heart attack. Now stupid Covid infected him and messed up my calendar.  (LOL).

The past 48 hours have been about Covid control and containment. The boys have been staying in the game room (primarily), venturing down to visit with me and to obtain more food. Scott has taken over the bedroom because it is so much cooler than the rest of the house.  I get the living room, which is the only area of the house that struggles to remain cool.  At this point I'll gladly accept the added heat over getting infected by Scott.  

Another day in paradise begins....

 

Cheeseburgers!

 

The cooling zones in this house are bizarre but, in my opinion, amazingly awesome. The heat wave has been oppressive with temperatures rising above 100 degrees. While our living room and upstairs bedrooms hovered around 80 degrees, our back bedroom stayed a comfy and cool 70 (with that unit turned off entirely).  I'm so used to melting and being miserable in the summer. Being comfortable in this heatwave has been amazing!

 When it becomes this hot it is difficult to find anything to do with the boys. If I were totally honest, I'd admit that I'm bored as well.  Yesterday, in an attempt to break up the monotony of the heatwave, we surprised the boys with a trip to their favorite restaurant du jour- Red Robin. The quick outing was exactly what we all needed to brighten up an otherwise sweltering day.  

The heat will persist today and through the week. I'm hoping it breaks enough to be able to explore a local splash pad in the evening.  Fingers crossed!

 

Back at It

 This past weekend has been our most normal since Scott's cardiac event. Yesterday he and I packed up and headed to the mall to sell FlexyFriends while Robby and Timmy stayed home and out of the heat. This was the first time we have been selling together since the event, and Scott's first foray back into the public and some physical work. 

For a few hours at the mall, I forgot that we were now a cardiac family. I recognize this as a milestone because I remember how my amputation was omnipresent at the beginning. Eventually I didn't think about it during every moment of the day. Yesterday I experienced the same when I managed to 'forget' about my heart fears. I'm calling this progress!

The heat is oppressive, so we are staying inside (with the exception of Cardiac Rehab). With the heat index in excess of 110 degrees, I know that the chances of my leg staying in place are minimal. The last thing this family needs is for me to slip out of my leg, fall and get hurt. Between the captive sweat and the heat condensing socket, these temperatures make my amputee life miserable.  

Thank goodness for great a/c. Our unit at our previous home was antiquated and definitely destined for retirement. There is no way that that unit will cool our old home in this heat. We would have been at a hotel or my Mom's house if we were still living in Virginia. We weren't sure about the robustness of the unit at our current home, but I am incredibly impressed with the comfort that is being pumped into these walls. With everything else in the world going crazy, at least I can stay cool. 

Nutrition

 Oh my goodness, this summer's weather has been as miserable as our moods. Between the stagnant air, the grey skies and the constant storms, our yard has turned into an overgrown jungle brimming with bugs and other unsavory critters. It is the end of June and we still haven't had a day nice enough to try out the neighborhood pool. I suppose I shouldn't complain since parts of this state suffered severe flooding.  I know we are lucky but none of us are feeling particularly jovial. 

Yesterday while Scott was in heart rehab I attended a cardio nutrition class. Finally!  After six weeks, I finally found somebody who could provide concrete guidelines for our new diet. I felt feeling empowered with information and a diet plan that is not too far off the way that we ate preheart attack.   

Today is an 'off' day because we don't have any rehab or medical appointments. We are really hoping that the rain holds off so that Timmy and I can launch some rockets. Fingers crossed, because the odds are not in our favor. 

 

I'm Back

 The past few weeks have been difficult. I feel like my life has been turned in a snow globe of medical confusion and chaos. As the pieces start to float into place I am starting to see my way through into a different future than we envisioned, but one that is now our reality. I think I just needed time to process everything. Time to cry alone and mourn our carefree cardiac ignorant lives.  Thank you for returning to read.

Timmy has been basking in his summer vacation. Last week Tiffany took him on his own personal adventure. Dubbed "T and T Adventures," the pair went to Hershey Park, Red Robin and launched fireworks at night. Timmy's excitement and joy was positively radiant. I also must admit that I am so proud of Tiffany for coordinating her first adventure. She did an amazing job! 

Scott is settling into Cardiac Rehab. We are beginning week three and he is becoming stronger by the day. Thank you for your support and prayers.

I'll be back tomorrow!

 

Happy Birthday Robby

 Friday was a big day in our family- it was the day Robby turned 19!  I can't believe he is almost out of his teens. I could not be prouder of the man he that is emerging. Over the past month he has stepped up and helped both care of his dad and the house. Of course, he has always been and will always be a hero to Timmy.

19 years has passed since I first held him, although when I look into his eyes I still see a glint of the little pirate I used to battle with Nerf foam swords. When I think that his official childhood is over I become overwhelmed with sadness. With so much else sparking my tears, I am not going to invite this abyss. Instead, I'm choosing to focus on the amazing adventures that will unfold with my grown-up son. 

Like most holidays this year, Robby's birthday celebration was low-key. I made his requested cake (vanilla) and we took him to Texas Roadhouse for dinner. He spent the evening playing a video game with Timmy which absolutely delighted Hamlet.  

Today we start the final week of school and the first week of cardiac rehab.  Sigh.  Wish me luck with both!

 

No Starting Quite Yet

 Its seems we were a bit too enthusiastic about the start of Scott's cardiac rehabilitation. While we did attend the first appointment on Tuesday, him wearing his sneakers and ready to work out and me with my notebook in hand, eager to take notes to help him at home, nothing of import occurred. We filled out forms and watched a PowerPoint presentation about the importance of completing Cardiac Rehabilitation. We were instructed to return next Tuesday to formally begin the program. 

Disappointed that we weren't starting that day, it was difficult to keep Scott's spirits up. He is feeling deflated and useless around the house. I am acutely aware of his frustrations because, while I have never had issues with my heart, I have experienced a life-changing medical event. Thus far I have refrained from offering this reminder as support because I fear it would come off as dismissive when that is the last thing I want to do.  

Yesterday we received a phone call from the cardiac rehab informing us that our insurance has summarily denied care. Ugh! I spent the afternoon working the phone and trying to come to a resolution.  It took me nearly 3 hours but I believe everything should be ready go for next Tuesday. 

Fighting insurance enraged me. Why is healthcare always such a battle in this country? Nobody should ever look at their spouse and wonder if they are going to have the financial means to maintain their medical needs! 

Memorial Day wrap up

 Timmy did a fabulous job presenting his Science Fair project. In a room full of moon phases and bean growth, uranium glass presentation was unique and unusual. His increased comfort level speaking publicly was on full display as he confidently taught everybody and fielded questions about his glass. I am so proud of him!

On Saturday we met my Mom at a local creamery for the afternoon. It was nice to sit outside in a different location and chat face to face for awhile. I know that it is going to be awhile before I can leave Scott overnight, but it is nice to know that my Mom is always willing to drive a little further for some ice cream.

Sunday was (and always has been) Scott's special "Day of Racing." He rises early and begins his day with F1 before the flag drops at his beloved Indianapolis 500. In the evening another Nascar race finishes out the night, logging another 600 miles. I don't get it, but I have learned to understand that this marathon day of car racing is one of his favorites.  

Monday we decided to take the boys to the local Go-Cart track to break up the day. They had a blast. I have a feeling that Go-Carting will become a regular part of our summer rotation.  

Today Scott reports for orientation for Cardiac Rehabilitation. To say that he is nervous would be an understatement. While I'm excited to learn his true limits and to have him begin the process of recovery, he is scared that it will trigger another event.  (The fact that Mr. Bill called and regaled us with a story of his own cardiac rehabilitation, which did indeed trigger a second heart attack, did not help!) While I know that Scott will be safe, I know that he is scared.  Fingers crossed!

 

Science Fair

 It is a big day in our house, and for the first time in a long time it has nothing to do with health! After working and planning for weeks, today Timmy will present his science fair project. He is extraordinarily proud of his topic, Uranium Glass, because it is both unique and heavily influenced by his big brother. (On a side note, everybody should be as fortunate as Robby to be perpetually viewed as a hero by at least one person in their life.)

As soon as the science fair concludes we will be officially celebrating Memorial Day weekend. Unfortunately this year we won't be traveling to visit my mom. I haven't been able to go to the local craft fair with her for several years and I was really hoping to go this time. But Scott isn't cleared to travel and he can't be alone, so we're going to settle in for the weekend. 

Don't worry though- I have some plans.

:)

 

Still Adjusting

 Adjusting to life as a cardiac family is difficult yet, in many ways, the emotions remind me of the summer of my amputation. Scott and I were both scared, frustrated and lost in our own ways. This summer those same emotions are again rising, but it is more difficult because our kids are involved. Watching them struggle to accept and adjust to life after their Dad's heart attack has been really hard.

Robby continues to blame himself for his dad's coronary event. While he understands that his dad suffers from coronary artery disease, the timing of the heart attack remains most unfortunate. I don't think it will matter how many times I tell Robby that it was not his fault, I fear he will always harbor a little guilt. (Scott's heart attack began as he was moving Robby out of the dormitory for the summer.)

While Timmy does not assume any guilt, which is good, he seems to have trouble accepting the changes within his dad. Until Scott completes cardiac rehab, there are a lot of restrictions on activities. There could be restrictions after rehab as well, but I keep trying to push that worry can down the road. Robby and I are trying to fill the void, but it is not easy!

 I've been so lucky that my leg has cooperated throughout this ordeal. The past two days have greeted us with heavy rains and cooler air. I woke up this morning and my leg is angry and does not want to be confined in a prosthesis.  I think today will be one for the couch and crutches.

 

Birthday Recap

 My birthday was both laid back and quiet, both of which our family needed as we continue to heal from Scott's heart attack. The weather was gorgeous so I made a reservation for us to all go strawberry picking. Timmy was especially excited to return to the farm, albeit a completely different farm, to resume a familiar and comforting tradition. Witnessing his excitement to pick strawberries showed me that I need to provide more familiar experiences for him during this summer. His world has also been turned upside down and I think he is finding comfort through familiarity. 

We had a great time at the strawberry farm which looked and felt very familiar to our old family stomping grounds. I'm going to check into the prices for their CSA and playpasses. If affordable, I think may be a fantastic option for our family, especially Timmy, this summer. We are going to be rather tethered to WV and I'm trying to find local activities that will spark joy.

In the meantime, we need to get through the rest of this school year. Timmy has two weeks left and then he is officially done. After some drama about school for next year, his teachers have worked tirelessly to create their won school based upon the current technology being used. In other words, despite the fears of the school closing, Timmy's education will continue without pause. Talk about a relief!

 

 

HAPPY BIRTHDAY TO ME

 Today is my birthday.  Traditionally I love my birthday as I I aist upon being doted upon by everybody in my family.  For a single day of the year I aspire to avoid preparing dinners, lunches or breakfasts.  (Well, in an ideal world I would love to opt out entirely from all adult responsibilities, but it never really happens.)

This year the anticipation of my birthday has only brought tears.  Our family is healing and is still too traumatized from the heart attack and scared of the future to enjoy a birthday, especially mine. 

50 has not been kind to us.  I want to hide from 51.

Returning

 I am going to do my best to returning to writing on a regular basis. My life has been crazy but I realized that I need the outlet for my emotions. Thank you for sticking by me.

Scott continues to recover at home. After four stent placements and the diagnosis of another artery blocked, our family lifestyle has been overhauled. While the kids are onboard and have not complained, I must admit that I discovered that a "family healthy lifestyle" is quite laborious! I feel like I am spending hours in the kitchen each day carefully prepping each meal. I'm hoping it eases with time because it is exhausting.

As a mercy, my leg seems to be complying beautifully. I despite spending considerably more time on my legs each day, I have been able to avoid skin issues and breakdown.  Now if my emotional meltdowns were as easy to avoid.

It's hard. It's really really hard. I don't want to be a cardiac family. I want to turn back the clock 15 months to when I was happy any and felt valued. But that isn't possible, so right now I'm in survival mode.

Getting through the hours until the days are easier. We've done this type of trip before and we know we will make it to the other side. But this summer is not going to be a lot of fun.

 

Home on Cardiac Recovery

 The past week has been among one of the most difficult in my life. I am eternally  grateful that Scott is home and on the road to recovery. Our lives as cardiac families is already very sufficient, but we will figure it out.  

Although things are different, it is nice to have everybody home. Timmy finally returned home, reuniting the family under a single roof.  With the days lost in the hospital I completely forgot Mother's Day.  Thankfully my Mom surprised me with a lunch visit.

Things are hard.  I feel like I'm treading water wearing a ball gown and weights.  

But we will be okay 

Heart Attack

 I'm sorry for the delay in posting.  

I never made it to Bernie.  Scott called and asked me to come home because he wasn't feeling well. By the time I arrived, it was obvious we needed to go to the hospital.  

He is recovering from a heart attack.  Yesterday they put in four stents and today we will start our new life as a heart attack survivor family.

 

Bernie

 Greetings from Pennsylvania!  I came up to visit my mom for a few days so that I could accompany her to a few appointments, relax and go to a Bernie Sanders rally tonight. While I'm in PA, Scott stayed behind to help move Robby home from college.  After a 9 am virtual final, Robby is officially done with his freshman year in college!

Today I am going to hang out with my Mom before heading to the Bernie rally with her. My mom loves Bernie and was ecstatic when she learned that he was bringing his rally to Harrisburg. She rarely asks for anything, so when she asked if we would take her to the rally, there was no way I could say no. My thoughts on Bernie are complicated and complex, but fulfilling my Mom's request was simple.

Tomorrow I'll head back home and help Robby unpack and organize his college gear. It will be so nice to have him home for the summer!

Better

 I'm still struggling, but the sunshine definitely helps to keep my moods lighter. Scott and I have been having a lot of fun working in the yard, removing old vines and uncovering flowers and plants that have been struggling to bloom. We've planted a vegetable garden in flower pots and blueberry bushes next to the house. From the way that the plants are responding, we should have a bumper crop!

The temperatures are turning and the trees are finally starting to green. I am shocked at how long it has taken this area of West Virginia to emerge from winter. It feels like we are about four weeks behind the blooms around us.  Regardless of the timing, I'm delighted to finally see green and flowers again.  

Today we are heading back to Shepherd to pick up more of Robby's dorm room belongings. I am looking forward to having him home for summer, but I'm not eager for the move and the sudden reintroduction of so much 'stuff' into the house. I'm hoping to spend some time this afternoon carving out a nice space in the basement for all of his dorm supplies.  

 

I'm Back!

 My apologies for not writing at all last week. To say that I was in a bad headspace would be an understatement. It was a rough week with several bright spots that I am trying to focus upon. Thankfully the cloud is beginning to lift and I am feeling more like myself.

The constant barrage of bad news has been overwhelming. Last week I learned that funding for the National Limb Loss Resource Center, the primary source of unbiased information for patients after an amputation. Why is unbiased important? Because every single manufacturer wants nothing more than to have first crack at the newbies.  The resource center stood to provide information and support without marketing. Apparently eliminating this resource is a necessary step towards making us great.

I mentioned bright spots last week. The best was Timmy's 11th birthday. Robby's classes were cancelled and he was able to surprise Timmy by coming home for the night to celebrate. Talk about exciting!

My little bike rider loves his new bike, but he is enthralled by his drone. He spends 18 minutes out of every waking hour flying this tool, not a toy, through the house and yard. He has surveyed our gutters, taken beautiful aerial photos and challenging himself by building obstacle courses. 

Have a great week. I'm going to soak up the sun and try to stay happy.

 

Birthday and Easter

 My Mom came down to spend her birthday and Easter weekend at our house. Her traveling anywhere overnight is a rare occurrence and one that sparked great excitement for Timmy. He spent Friday evening helping Robby bake her birthday cake while Saturday was spent cleaning and decorating for her arrival. Hopefully she was able to feel how special she is to us and to so many!

Sunday was all about Easter. The bunny hopped around the yard in the morning in anticipation of Timmy's enthusiastic collection. My sister, my niece and nephew drove down for dinner in the afternoon. It was nice to have a full house. This was our first time hosting since we have been fully unpacked. With two full kitchens, it turns out this is an amazing house for entertaining.

Unfortunately, all good things must come to an end. Today I'm facing reality. I really don't want to do that! Hopefully we will get some idea on future plans for Timmy's school and my employment. Please send us good thoughts! 

 

Change

 Welp, apparently my 'year of change' had plans beyond the 12 months I allocated. Timmy's school, where he has been thriving, is closing at the end of this term. I felt like the rug was pulled from me when I read the email. Everything that I had planned for him next year (and in the subsequent years) went up in smoke. Yet again, I find myself struggling over the boys' education.

We moved to West Virginia without regard for their public schools because we were secure in Timmy's placement. Now we are in an area which ranks 50/50 in education and offers few choices. What are we supposed to do now?  Sigh. I guess today I start evaluating virtual schools.

Any recommendations?

Creatures

 Our new home, although still set among trees, is considerably closer to 'civilization' than our previous house. Because of this, neither Scott nor I anticipated wildlife intrusions.  It turns out that it doesn't matter how far you are from a Waffle House. If a bear smells your trash, they will come to your house.

Last week we heard a loud crash outside our back door. After investigating, Scott discovered that the trashcan (which was nearly full) was knocked over.  He picked it up and went back inside.  About 30 minutes later we heard the crashing sound again. This time the trash can was on its side and the trash was missing. It wasn't strewn around the yard, it had just disappeared. It was strange!

About 20 minutes later, while settling back into bed and discussing the missing trash, we heard more sounds. Scott took off running towards the back door. By the time I arrived (it took me a few seconds longer because I had put on my leg) I heard the bear snorting at the glass door before running away. In the morning we found the trash bags about 50 feet into the woods, opened and strewn in circles.  

We've never been so close to a wild bear. Although scary, it was also exciting! Our trash is now kept securely in our garage, so hopefully he will not be tempted to revisit.

Unfortunately, the bear was not our only unwelcome visitor. Yesterday afternoon I decided it would be nice to enjoy my lunch on my porch swing. I went outside, set up my audio book and set down. I looked to my left and saw a huge black hose laying down the driveway. It took me about 10 seconds to realize that we do not own a black hose, and that I was looking at an enormous black snake. 

Preparing to move the snake, Scott and I realized that there was another one curled up close by. He moved the biggest one but the medium one went back into a hole under the porch. We set up the camera and waited. 

Throughout the afternoon snakes slithered out from under a small hole in my cement patio. So far 4 snakes have been evicted but we have seen the head of another. Any ideas? Because snake wrangling is way out of our comfort zone!

 

Fun Escape

After a rough week with "really hard math" at school and uncomfortable weather all week, both Timmy and I needed a happy break on Friday. To his surprise and delight, he logged out of school early and dutifully hopped into the SUV for an unknown destination. Timmy is my adventure kid and is always up for a surprise, so I knew it wasn't going to be difficult to convince him to tag along.

We first drove to Red Robin, his new favorite restaurant, where he consumed a double cheeseburger without inhibition. (He witnessed his brother tackle the triple two weeks ago and is pining to keep up.) After lunch we strolled through the mall and spent about 30 minutes picking a new book from the bookstore. At the end of the mall we found a movie theater and his Aunt Sheri! 

He was over the moon to see the Minecraft Movie. Apparently it has been quite the point of discussion among his classmates and Timmy was hoping to see it soon. I wasn't sure what to expect but it was chocked full of nostalgia and was a delightful movie. If you had kiddos who played Minecraft, I will tell you that the movie will probably jog a lot of core memories of the game being constantly played in the background of life. 

 

Pain

 The wild fluctuations in weather have caused my 'not-so-phantom' pain to flare. Sleeping has become elusive as my leg morphs into a raging cricket at night, hopping and kicking with each zap of pain. Needless to say, I'm not planning on tackling any massive projects today. As soon as Timmy logs into school, I'm going to try to take a nap.  Between the plp and my general anxiety and hot flashes, the past few days have been miserable. 

I am hoping to nap and kick the pain to the curb soon because this weekend we have a big FlexyFriends event. We are heading to our first 'ComicCon" of the year. Fingers crossed we do well! Between the layoffs and the tariffs, we are not sure what to expect. 

Tomorrow we are heading down to set up and being mobile would be very appreciated by all.

Rainy Day Pain

 Yesterday was rainy and cold. My beautiful daffodils looked miserable as they were pelted into the ground by the relentless rain. The icky weather will continue through today before it clears to just cold temperatures for the rest of the week. Where is Spring? It feels like the whole world is going crazy!

I wouldn't mind the rainy weather if it didn't bring miserable phantom pain along. My leg has been miserable for the past two days. The twitching and zapping has been exhausting because it becomes most active as I try to sleep. I've developed quite a few tricks over the decades to help, but nothing takes it away completely. I'm forced to just ride it out until it vanishes as quickly as it arrived.

Here's to clearer skies and less pain for everybody. (And maybe a rise in the stock market too!)

Never the Same

 The anniversary of Lt. Ofc. John Ellen murdering my brother was difficult. We all continue to struggle with not only his absence but the way in which he was so violently removed from our world. I know I will never be the same, and I have seen the physical changes it has carved into my mom. The mom and nana that we all knew was shattered on April 3 and she will never be the same. 

I have so much more to say but the tears are starting to fall.  Maybe I'll be able to go into it more tomorrow.  Thank you for your patience as I work through my crazy life.

Still No Justice

 One year ago today, Lt. Officer John Ellen of Travis County Texas responded for a wellness check on Jae Friedman. 

Officer Ellen fired 9 bullets through my blind and above-knee amputee brother as he was sitting in his wheelchair drinking a beer. The last words spoken while my brother was alive were "f*cking ch*nk." 

Yet the blue wall stood to swath him in the protection of qualified immunity and his family was sent the bill for the investigation.

 It has been a year and the pain has not subsided and the questions persist. 

My ire towards the police establishment grows exponentially.

My heart shatters when I think about it, so today I am going to try to stay busy and forget.

But I will never forget Jae Friedman, because his life mattered and he did not deserve the violent end he received. 

www.justiceforjae.com

I Fell

 Happy Limb Loss Awareness Month! 

Unfortunately, there is very little happy to celebrate in terms of living with a disability in modern America. Funding for the Amputee Coalition is in peril as the ACL is being dissolved. Services for disabled Vets have already been cut and needed community resources are shuddering.  It sickens me to my core to see individuals who have benefited from these organizations sit back quietly as those services are stripped for the next generation.  

I want to share a little story that happened to me yesterday. It has left me both bruised (literally) and emotionally. But Timmy quickly reminded me that we get kicked a lot but don't stay down for long, so I have decided to share what happened. I have moved deep into a red state, and the differences are becoming stark.

I was outside in the beautiful sunshine, admiring the flowers and seeing what else is popping up around the yard. I tripped over a landscape rock that I didn't see and stumbled into the center of my driveway before succumbing to gravity. I landed on my sound side knee and hand. Unscathed but stunned, I stayed on the driveway for a moment before starting to get up.

As I began to orient myself, I saw a car loop around our cul-de-sac and pull in front of our driveway. The window was already rolled down and the driver was laughing.  He gleefully screamed "serves you right you fucking libtard" before driving away. 

Since when did seeing a disabled woman fall become a source for amusement? And why did my political affiliation impact their decision to help?  I would help anybody who fell, regardless of the hat they were wearing.

Would you?

Smoke House Burger

 We had a fun albeit quiet weekend. On Saturday my sister came down for lunch and to explore the area. Excited for the opportunity to drive her new Jeep in the warmer temperatures, she was excited to tool us around for a few hours. Timmy seemed especially impressed by the 'headless' Jeep and is looking forward to going road tripping with his Aunt Sheri this summer. 

Yesterday the gorgeous weather continued, allowing us the opportunity to work outside while Timmy rode his bike. Seeing Timmy get back onto his bike was heartwarming and exciting. He has been hesitant about riding (or doing anything deemed dangerous) since breaking his arm last year. Breaking through his fear and regaining his love of biking was fantastic to witness. The smile on his face as he whizzed up and down our driveway was the best thing I've seen all month.

After weeding, planting and riding bikes all afternoon, I decided it would be the perfect evening to fire up the grill.  Unfortunately, after hearing the burgers sizzle on the hot grill our propane tank puttered out and ran cold. I thought it would be easy to finish the burgers inside. 

I never realized it before, but my kitchen stove range does not have a vent. The burgers smoked severely and quickly billowed and filled the entire bottom floor of the house. The fire alarms started beeping aggressively and angrily as we frantically tried to clear the smoke. I opened every window in the solarium, forgetting that I had just hung a stained glass fusion block earlier in the day. The block came down on the top of my head (ouch) but thankfully did not break. 

It took us nearly an hour to clear the smoke out of the house. Scott had to to dismantle and remove the smoke alarms to get them to stop screaming at us. (They have since been reassembled and rehung.) Needless to say, our 'smokehouse' burgers left much to be desired!

Quiet Day

 Yesterday I attended Timmy's Spring Parent/ Teacher conference. He was described as an empathetic, funny, hardworking student. I could not be more proud! He is thriving in his school and is loving having a dedicated classroom in the house. With everything else uncertain, it is reassuring to know that we made the correct decision when it comes to his school.

The weather is supposed to be nice today so I am looking forward to soaking up some sunshine. Hopefully the warm weather will last through the afternoon so that Timmy and I can take another long walk through the neighborhood. We see so many houses with swingsets/ trampolines set up. We are really looking forward to meeting the other kids in the neighborhood.

 

Bedroom Re-do

While Timmy was in class I decided to orchestrate a mini surprise. His bedroom, although not terribly messy, was not organized. He has been living in a state of unpacked but not settled since we moved. For Christmas he received lights that have not been hung, his posters were still not on the walls and the furniture was not in its optimal location. With his classroom door closed I was able to enter his bedroom undetected.  Three hours later, his Dad and I had completely redesigned and decorated his bedroom.

We did not intend for the project to take three hours, but one task led neatly into another. Even though it was a lot of work, I'm delighted with the results. Timmy's collectibles are all concentrated in a 'museum' corner. He has room for his tumble mat and two distinct reading corners, both highlighted with app controlled color lights. Scott and I were happy with the results- but Timmy was utterly thrilled. 

Hamlet spent the night running up and down the stairs, hugging us and thanking us for our efforts. He took pictures to share with Robby and couldn't wait to test it out. Fingers crossed he keeps his new digs clean.

 

normal

 After a nice albeit short visit to Ohio, it was nice to be home. We didn't do anything terribly exciting or adventurous during our visit. Our purpose was to visit and to help around the house, and we were successful in both fronts. It was odd not having Robby with us and his absence was felt strongly by Timmy, who missed his walking and exploration buddy. Without his big brother, Timmy was definitely more bored during this trip. 

We came back from Ohio with enough time to unpack and to enjoy the last few days of Timmy's spring break. Robby came down with a terribly poison ivy rash which required medical attention. We were able to get him to the doctor on Friday and get him started on steroids quickly. 

Today Timmy returns to class and our home should return to normal. I have loads of travel and spring break laundry that requires attention. It always amazes me how a few days away can lead to so much cleaning!

Ohio

 After a long afternoon in the car, we arrived safely in Ohio by dinnertime. It's odd not having Robby with us, but Timmy is basking in the attention.  Today we are going to work in the yard and help around the house. 

Have a good day!

Fun weekend

 While I am sad that Robby's spring break has drawn to a close, I'm happy that he is excited to return to college. He had fun at home but he is missing his friends and the autonomy that being away from home provides.  This semester is going so quickly, he is going to be home for summer in just a few weeks.

On Saturday I decided to take both boys out for a little Bro' Crew adventure. We went to Red Robin (a favorite) before discovering an amazing little art studio. We spent a few hours learning how to work with glass and making sun catchers to hang in the solarium. I was especially impressed with Timmy's ability to focus and the absence of cuts on his fingers when we left. He was definitely very careful!

Today we are starting Timmy's spring break by taking Robby back to college. After we drop him off, we are heading to Ohio to visit with Scott's mom for a few days. As always, thanks to my sister for coming down to take care of the cats.  They love her!

 

Pittsburgh

Yesterday we piled into a rented SUV and headed to Pittsburgh for the day. Our SUV, which was purchased when Robby was born, now boasts over 340,000 miles. Concerned about her ability to tackle Squirrel Hill, we decided that it was worth the aggravation of securing a rental. We knew that a 7 hours RT was going to be a lot for everybody and being comfortable was going to help stay the bickering.

Although the drive became long and boring, everybody held up beautifully. We were able to visit with my Aunt Janet for a few hours before heading back home. Her severe memory issues, coupled with our lack of familiarity with each other, makes conversing for long periods of time uncomfortable.  I never had a relationship with my Aunts, so being throw into the mix as responsible for her well-being is difficult to navigate.  

It was a long day of driving, but I'm glad that we went. Timmy has never met Janet and now he has a memory. (If he loses the memory, he will have photo proof.) Janet has been asking to see Robby, which prompted our immediate visit, yet she seemed to have no real interest in him during the visit. I'm hoping that she will remember that he was there, even if she forgot why she wanted to see him.

 

 

 

Anniversaries

 Yesterday marked 27 years since my foot was injured. Anniversaries are odd. Some years they fly by without pause while at other times I find myself paralyzed by memories. Yesterday was an odd amalgamation of both.

I found myself haunted by what-ifs and memories throughout the night and into the wee hours of the morning. It was odd because it was the anniversary of my accident but the majority of my thoughts focused on my brother. It has been almost a year since he was killed, and I miss him.  I guess my anniversary somehow opened a floodgate of emotions that I have been artfully concealing for nearly a year. 

In an attempt to maintain my sanity and to get through the day, we spent the majority outside working in the yard. While Timmy was logged into class upstairs, Scott, Robby and I cleared out a huge rock garden in our side yard. We uncovered nearly 100 daffodils that had been struggling to peek up through the leaves and debris.  It makes me so happy to look at our cleaned out bed and I can't wait for the flowers to bloom. 

I did my best to try to assist Robby and Scott, but my efforts were minimal. Clearing the bed required a combination of rock climbing skills and billy goat balancing that I simply do not possess. While they climbed the rocks and pulled the vines, I stayed at the base and picked up the debris after it was tossed.  I definitely got the easy part of that chore!

 

 

Home

 Friday was Scott's birthday. As luck would happen, it coincided with the start of Robby's spring break. Going to pick up Robby from college to bring him home for a week was the perfect way for Scott to spend his afternoon. (This came straight from him, not me.) Having a full house was definitely the best gift we could provide, but the Washington Capitals tickets (hopefully timed for Oveckin's record goal) were a pretty close second. 

Yesterday afternoon we headed to hibachi to celebrate the start of another school break. (Finding a new hibachi restaurant was a family priority when we moved.) On our way home from lunch we discovered an amazing restaurant supply store where we scored 10 pounds of irregular sliced Kunzler bacon for $20, delighting my little bacon eater. 

This week will be awkward because Robby is on vacation while Timmy is still in school. This is the first year that their vacations do not coincide. I don't like it, but I'm going to embrace what we were given. This week Robby is home, and I'm delighted.  Now I need to go fry up some bacon.