Yesterday
was Picture Day at Robby's school. Unlike last year, where I was forced
to run to Kohl's in search of a suit, this time the students were
allowed to wear the clothing of their choice (or what their parents told
them to wear). Most kids want to wear their favorite shirt featuring a
cartoon character, video game avatar, or SuperHero. Not my son. His
request was specific and unusual. He wanted to wear a tuxedo.
Yes,
Robby begged to wear a tuxedo for his school photo. I reminded him that
he would be the only person in fancy clothes, but he was unswayed. He
promised that he didn't care if he was teased for his attire, nor was he
discouraged by the discomfort of wearing such an elaborate garment. He
was insistent, and once I learned his reasoning I had to try to make it
a reality.
Robby thoughtfully explained that he
wanted to wear "fancy clothes" because someday he is going to be
President of the United States. When he is President, he believes that
people might look on Google for his school photo. He thinks that he
should start looking important now, and in the eyes of an eight year
old, important equates to a tuxedo.
We are fortunate
that Robby's music teacher had a child sized tuxedo that she was
willing to lend him for his photo. Although she promised to bring it to
school, Robby was nervous and decided to cover his bases. In the
morning he shunned the Minecraft shirt I suggested he wear in lieu of
his suit. I must admit that he looked quite dapper and adorable
strolling into his school clutching his turtle lunchbox while wearing
his blue dress shirt, yellow tie, grey vest and jacket. The entire
ensemble somehow paired beautifully with his beat up, dirty and scuffed
cowboy boots.
His teacher remembered the tuxedo, a
fact that he couldn't wait to tell me. He managed to convince his
teacher to allow him to call me during the school day with the soul
purpose of letting me know that he was wearing "fancy man clothes." I
love that he has the confidence to wear something out of the norm
without hesitation. I can't wait to see these school photos! If nothing
else, he has added to family lore.
About Me
- Peggy
- I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.
Tuesday, October 07, 2014
Monday, October 06, 2014
SuperMom
Friday
morning I scooped up Robby and his friend from school (with all of the
necessary permissions) and took them on a wonderful autumnal adventure.
To say that the pair was excited about their personal field trip would
be an understatement. When I walked into the school, the friends were
clutching their bagged lunches and pacing back and forth, anxiously
waiting for the fun to begin.
Robby has been visiting
agricultural themed fun zones since he was Timmy's age. Going to the
petting zoo, pumpkin patch and farmed-centered play zones has been a
normal part of his childhood. He was shocked to learn that this was his
friend's first time at a farm. Robby regaled him with stories and
possible features as we drove through the beautiful back roads en route
to Great Country Farms. By the time I pulled into the parking lot they
were so excited they nearly leaped out of the car before it had fully
come to a stop.
Thankfully the friends were patient as
I gathered up all of Timmy's belongings. The bottom of the stroller was
filled with bottles, diapers, blankets, extra clothing and the boy's
lunches. True to form, I ended up pushing the stroller with the
overflowing basket on the bottom and the open seat on top, all because
Timmy preferred that I wear him on my chest. (As a side note, 14 pounds
added to my hips and bum does not seem nearly as heavy as 14 baby
pounds strapped to my chest and torso.)
After the
admission was paid, the boys took off towards the giant jumping pillow.
Robby certainly didn't need, nor did he want, to play with me as he had
in the past. I discovered the joys of simply watching him have fun with a
friend. Watching and quietly eavesdropping on their conversations, I
was able to see a completely different side of my little Koopa.
I
witnessed his ability to work out disagreements without becoming
angry. When his friend remarked that he had never seen a live goat and
that the only goats he had ever seen were over a fire, I saw a perplexed
look come across Robby's face. Confused, he asked "Why would you put a
goat over a fire? That would cook him." Without missing a beat, his
friend responded, "Well of course you cook him. You can't eat them
raw."
Robby had never realized that some individuals
eat goats and that they aren't simply adorable little farm pets. After
debating the virtues of consuming goat, the friends amicably agreed
never to discuss the topic again. Without pause, they were able to
dismiss the great goat eating debate and continued playing at the farm.
I think that a lot of adults could take their cue on conflict
resolution!
We spent nearly 5 hours at the farm, and
despite the drizzly weather and mud, everybody had a great time.
Apparently a little rain makes everything at the farm more fun,
including watching the piggy races more exciting. (But I must admit that
I had a "this is my life" moment when I realized I was sitting in the
bleachers, in the rain, waiting to watch and cheer little piglets run
around a track.)
While Robby and his friend ran and
played, Timmy and I quietly strolled around the farm. Hamlet was wide
awake and utterly enthralled by everything he saw and smelled. He never
fussed or cried, perhaps because I was wearing him the entire time.
Regardless of my aching back, I was thankful that I have recovered to
the point where I can walk around a farm with an infant strapped to my
chest.
On the drive home I was privy to
eavesdropping on another precious conversation- the great SuperHero
debate. Again, I was surprised to learn that Robby could hold his own in
the conversation. He is an admitted non-fan of SuperHeroes, shunning
both their toys and branded clothing. Despite his aversion, he was able
to defend Batman in the "who is better, Batman or Spiderman" debate. (I
felt like I was thrust into an episode of The Big Bang Theory listening
to this conversation.)
Robby's ignorance about
SuperHeroes was evident on one occasion when he pointed out that Batman
had cat ears allowing him to hear better than everybody else. His friend
immediately corrected him by pointing out that they weren't cat ears,
that they were bat ears. After all, his friend exclaimed, that is why
they call him Batman;
Perhaps cuter than listening to
the Great SuperHero debate was witnessing Robby's shock at learning that
Batman was, indeed, part bat. "Woah, slow down. Are you saying that
Batman is supposed to be a bat? Wow. You're blowing my mind. That's
insane. My whole life, I thought that he had cat ears." I was proud of
myself for containing my giggles.
After his friend was
returned to his mother and my boys were both bathed and fed, I felt a
great sense of satisfaction. I had managed to provide both of my
children with a wonderful day. For a brief moment, I felt like another
SuperHero should have been included in the car debate. After all,
SuperMom may not have animal traits, but she certainly has her merits!
Friday, October 03, 2014
Personal Grief
Last
week I had my final post-operative appointment since the hysterectomy.
Physically I am healing well, albeit a tad slower than we both would
like. The prescription to slow down and take it easy is nearly
impossible to fulfill when I'm trying to take care of Timmy and Robby.
I'm doing my best to take care of them and myself and have come to
accept that my recovery may take longer because of my obligations.
After
the pelvic examination I was asked the normal barrage of questions. Am I
bleeding? Do I have pain? How many hot flashes am I having on a daily
basis? All of these questions I expected and have fielded many times
since the surgery. At the end of the medical interview, I was asked
something that stopped me in my tracks. Are you grieving?
Am
I grieving? I didn't quite know how to respond to that question, but it
certainly gave me pause. I have been feeling an overwhelming sadness
since the hysterectomy, but I chalked it up to pain, fatigue and
hormones. I never considered grief; I guess on some level I somehow felt
that my situation wasn't worthy of this process.
It
took me a long time to acknowledge that I needed to grieve the loss of
my foot after my amputation. During those difficult and dark months I
was stuck in limbo, pretending to be okay for everybody else while
inside I felt like I was caught in a tornado of anger, fear and sadness.
As soon as I allowed myself to grieve my little piggies that went to
market, I began to heal and move forward.
It never
occurred to me that I would be reliving this scenario, only this time I
am processing the loss of my uterus and ovaries. On some level it feels
silly to admit that I am grieving the loss of these organs. After all,
they aren't something that are seen or relied upon daily. Unlike
adjusting to my amputation, where I found myself grieving the bone and
tissue of my foot, this time I find myself mourning the lost
possibilities and dreams.
Logically I know that Timmy
is my last child. I'm 40, Scott is 47 and our family is now
established. I love my two boys with all my heart, and I am so very
lucky to be their mom. I guess I just wanted to hold onto the dream of
the potential for more children a little longer.
I've
tried to talk through these feelings with Scott, but after being
shrugged off numerous times, I've come to accept that he just doesn't
understand. His perspective is very pragmatic. I needed the hysterectomy
so that I could be alive to raise the Timmy and Robby. We weren't going
to have any more kids, so in his eyes I haven't really lost anything.
Heal, take hormone replacement therapy and move forward.
Moving
forward is impossible until I acknowledge what I've lost. The surgeon
didn't just remove the ovaries and cancer. I forfeited something
precious in exchange for removing the cancer; I surrendered my
fertility. In my waking life I know that we were done having children.
However in my dreams at night I always held out a glimmer of hope,
exploring the possibilities of what could be. That spark has been
forever extinguished, and it hurts.
Thursday, October 02, 2014
Bad Day Perspective
Yesterday
was not my best day. Timmy had a difficult time sleeping the night
before, forcing me to yet again see the sun rise with less than 2 hours
sleep. In my sleep deprived stupor, I put my coffee cup under the Baby
Breeza formula maker spout and Timmy's bottle under my Keurig.
Thankfully I caught the mistake before feeding Timmy my coffee, but not
before I took a rather large swig of baby formula. If I had the
opportunity, I would have just gone back to bed. But Timmy surely
wouldn't understand the Mommy-do-over, so I put the bottle and coffee
mug in the sink and started again.
Robby did nothing
to enhance my morning enjoyment. Instead of my sweet little Koopa, Robby
Rotten sauntered out of his bedroom. After a few attempts to say good
morning only to be scuffed off, I had no doubt that he had a severe case
of the grumpies.
I hate clashing with Robby, but I
love him enough to discipline him when necessary. In the period of 30
minutes he managed to lose every electronic device and was banned from
the television. As I gathered up the cupcakes, cake, birthday gift and
cards I secured for him to give to his teacher for her birthday, I began
to fully appreciate the irony of being called the "World's Meanest
Momom."
I love him to death, but he becomes
extraordinarily dramatic when he is being reprimanded. My "You need to
respect and not sass me" conversation was immediately skewed and
regurgitated as "You hate me and you never want to hear me talk again."
I assured him that I will always love him to the moon and back, and
reminded him that he is a good person who made a mistake. Trying to
explain that I am punishing him because I love him is a lost concept for
an eight year old. I was arguing what he perceived as being completely
illogical. After listening to Robby Rotten complain and lament his
punishment for the entire drive to school, I have to admit that I
relished the silence in the car after he was dropped off.
I
came home and tried to load the dishwasher only to have the rack fall
off of its braces. I just left the dishes in the sink and walked away. I
just don't have the energy for one more thing breaking down in this
house. I sent Scott a text and asked him to add superglue to the grocery
list.
The remainder of the morning was spent
combating creeps on Facebook. I don't know if it is season, but
aggressive devotees seem to be strutting their feathers lately! I am
fairly easy going, but I have no tolerance for individuals who reap
sexual satisfaction through interacting with amputee women. After a
cyber confrontation in which I was called horrific names which,
considering the source, I opted to wear as a badge of honor.
My
afternoon was monopolized by caring for an inconsolable Timmy. He was
agitated and fussy. He only stopped squirming and fussing long enough to
vomit all over me which he did repeatedly throughout the day. I hate
seeing him so uncomfortable and feel both helpless and frustrated when I
can't calm his colic.
To top off my terrific day,
Scott had to go to the dentist after work. Yes, the dental drama is live
and well in our household. I tried to be supportive by pointing out
that this was just a routine cleaning. I was summarily told that I was
being dismissive. I know enough that when the dentist is involved, I can
do nothing right. I gave up and finished my stash of chocolate
truffles.
On my way to pick up Robby from school I was
close to my wits end. I was exhausted, covered with baby vomit, feeling
disrespected and just plain sad. As I turned the corner near a major
intersection I saw a bicyclist being struck by a car. I immediately
pulled over and ran to see if I could be of assistance. By the time I
arrived, the cyclist was standing and, although shaken, appeared to be
okay.
All of a sudden my bad day didn't seem so bad. I guess it is all about perspective.
Wednesday, October 01, 2014
Comprehension Issue
On Friday Robby and his cousin Tiffany accompanied me on errands. On the
way home we decided to surprise Nana with some donuts. (Apparently the
love of sweets has a strong genetic link.) Typically quick with
complaints when I add stops to the errand run, both of my young
passengers were delighted by this impromptu stop. They were more than
willing to help me pick out the sugared and decorated treats.
After
showing me the donuts that they wanted, the pair stood behind me
towards the entrance of the store. After what seemed like an eternity, I
was finally handed my box of donuts. (I almost recommended that the
employee enjoy one of their sugary confections to get some energy, but I
thought better of my observation and simply smiled.) I turned around
to gather the kids and leave only to realize that they had migrated to
the outside door.
When I reached them, neither one of
them had their shoes on, and Robby was in the process of desperately
trying to remove his shirt. Tiffany, his slightly older cousin, was
uncomfortably pulling at the bottom of her shirt. But Robby was really
struggling to strip down. Surprised by their sudden disrobing, I
snapped, "Robby, put your clothes on. What do you think you're doing!"
He
looked at me with an expression of great concern and pointed to a sign
on the door. "Momom, they should not have served you. You see there
(pointing to a hand written sign on the door.) "See here. It says, No
Shoes. No Shirt. No Service."
While he has certainly come a long way in his reading, we obviously have some more work to do on comprehension.
Tuesday, September 30, 2014
New Liner, No Problems!
I
have been an amputee for more than a decade, and during that time I
have learned volumes about living with limb loss. Socket fit, liners,
suspension systems and other related terms have become a normal part of
my vernacular. The time when the jargon was unfamiliar and scary feels
like a lifetime ago. Perhaps the most important thing that I've learned
is that things will always change and that I will constantly discover
new aspects of living life with a prosthesis.
The
socket fabrication after my most recent surgery has been frustrating and
labor intensive. Kudos to Elliot, my prosthetist, who never gave up on
me or on the process. He continued to make adjustments, new molds and
changes in the quest for comfort. When we finally got my leg to a point
where I could wear it and feel okay, he pushed for improvement. By that
point I was willing to accept the little discomforts that popped up
through the day. Elliot continued casting, fabricating and tweaking
because he wanted me to be pain-free from the moment I donned it until I
took it off at night.
Last week I had an appointment
for what felt like the 100th socket adjustment. I just couldn't find
the words to describe what I was feeling, but I knew that it wasn't
ideal and completely comfortable. I wasn't in pain, but I did feel an
awkward soreness after I began to walk. As I grasped to find the correct
adjectives, I could feel tears welling up in my eyes. I hate crying in
public, especially when it is out of frustration!
Elliot
had me take off my leg and thoroughly examined my limb. He handed me a
new type of liner, one without the seals that I have been utilizing for
years. I slipped it on, stepped into my leg and instantly felt normal.
The indescribable sensations were gone, and my walking felt reminiscent
of my pre-surgerical life. My tears turned to a glint as I informed him
that he was not getting this liner back.
After all of
the socket adjustments, the hours of work and worry, my issues were
something as simple as a liner. While I love the seal-in technology
afforded by my previous liner, my limb is just not healed enough to
handle the pressure. The liner seals wrap around the surgical site,
causing the torquing and compression that was so difficult to describe. I
am now back in a regular liner, without the seals, and completely
comfortable. While I am not thrilled about the prospect of wearing a
sleeve again, even if I know it is short-term until my limb completely
heals, I am delighted to be comfortable. I never would have guessed that the discomfort I perceived as a socket issue was really the result of a liner.
Monday, September 29, 2014
State Fair!
This past weekend the weather was unbelievably beautiful. It was warm
and sunny without the sticky humidity that often accompanies those
temperatures. Acquiescing to responsibility and spending Saturday
running errands and working around the house, I was anxious to get
outside on Sunday. It wasn't hard to settle on the family outdoor
activity; the state fair was nearby.
I made several
bottles for Timmy, verified that his diaper bag was stocked after
stowing a few bottles of water in the bottom before we headed out for a
day at the Fair. Robby was a non-stop chatterbox during our 90 minute
drive to the fairgrounds. Typically consumed by iPad games during car
drives, it was refreshing to spend the time talking. I was reminded
again that he is an extremely perceptive little guy!
Sporting
their all-access ride wristbands, Scott and Robby nearly ran to the
midway amusements. Scott claims that he endures the rides out of a sense
of paternal responsibility. Looking at the grin on his face as he was
being whizzed, twirled and whipped around by the rides, I began to
realize that Robby comes by his love of amusement rides naturally.
Obviously Scott loves putting his equilibrium to the test. I'm just glad
that he found an eager ride partner!
Although he didn't go on any rides (despite Robby's offer to take
him and my being mean for saying no) he smiled the entire time. I finally quelled Robby's pleas with the promise that he could take his little brother on the kiddie rides next year. My goodness he has come a long way towards embracing his role as big brother!
Timmy adored the fair. My fears of his crying and becoming agitated never materialized. He was mesmerized by the lights, sounds, smells and movements. Smiling from ear to ear, he charmed everybody who stopped to peer into his stroller.
While
the two older boys were occupied on various rides, Timmy and I spent
the time people watching and walking. We did a lot of walking. On my
feet and moving for 5 hours straight, I really put my revision surgery
and new leg to the test. Happily both delivered, and I was able to
remain pain-free.
I was pain-free but exhausted by
the time we meandered back to our car. I suppose the fatigue should have
been expected since this was the most active I have been since being
put on bed rest in March. It was wonderful to feel tired from an active
day instead of from pain medication and sleepless nights. What a
wonderful day, and as an added bonus I finally have my first tan lines!
Timmy adored the fair. My fears of his crying and becoming agitated never materialized. He was mesmerized by the lights, sounds, smells and movements. Smiling from ear to ear, he charmed everybody who stopped to peer into his stroller.
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