About Me

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I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.

Friday, January 12, 2018

Relating

I have a new respect for how stoically Robby has handled all of his ear issues. My ear has been packed with gel for 36 hours and I'm already at my wits end. I feel unbalanced, uncomfortable and frustrated with the lack of hearing. I am saddened to know that Robby has lived his life with similar circumstances, yet I'm incredibly proud of how well he has adjusted. 

Robby has been extremely empathetic throughout my ear troubles. When I complain about the pressure and discomfort, he fixes me tea and brings me a blanket. He tried to calm my nerves before the procedure by offering tips and observations that he gleaned during his own ear surgeries. He has been extremely sweet and caring because, as he puts it, he "knows all about ear crap."  

This morning my ear feels better. I suspect that the combinations of the steroids and the ear gel are beginning to work their collective magic. I'm hopeful that my day will progress as pain free with minimal ear distraction.

I feel silly complaining, but since this is my blog and I'm the one experiencing the ear trouble, I feel comfortable venting. Ear issues stink! Even when I am at my most frustrated I can't help but reflect upon everything Robby has endured, and will continue to endure, because of his ears. I am not happy that this has happened to me, but being able to relate to my son has been a shining positive out of an otherwise yucky experience.

Thursday, January 11, 2018

Ear Issues Continued

Yesterday I was optimistic that I would  finally be able to put my ear woes in the past. Although I wasn't looking forward to the ear procedure, the prospect of no longer dealing with ear pain was appealing. I have been dealing with ear issues since the summer. During the past six months I have consumed bottles of antibiotics and used a medicine cabinet full of ear drops. Nothing has worked, so I drove to the surgeon with nervous energy as I was excited about regaining an ear-pain free life.

Unfortunately my procedure did not proceed as expected. I emerged from the appointment with sharp ear pain, another prescription and an appointment for return visit next week. Apparently some of the tissue remains tightly adhered to the ear drum, which made removal both painful and dangerous to the structures. After a few (painful) attempts, the doctor opted to go another direction.  

My ear canal was filled with a thick goop which is supposed to help soften all of the tissues. I'm hoping that this works because my ear feels painfully congested, and now my hearing is completely blocked in my right ear. Trying to look on the positive side, at least the kids’ squawking isn't nearly as unnerving because I can hardly hear it!

Wednesday, January 10, 2018

Ear Issues

With the temperatures hitting a sweltering (yes, I'm being sarcastic) 40 degrees today, I'm optimistic that everybody will be able to to go school on time and stay all day. I've enjoyed having them home, but after nearly three weeks I'm ready for a semblance of a schedule to resume. Of course, Scott and Robby (and probably Timmy) disagree and would happily accept any and all snow days offered.  

Although the boys are disappointed with the warming trend, the melting ice makes me happy.  I have a doctor appointment scheduled for this afternoon that I cannot miss, so the fact that I won't have to contend with icy conditions is a relief. After several months of pain, pills and an arsenal of ear drops, I think I am finally on the correct path. I have a follow up appointment with an ear specialist who is confident that he can help me find comfort and hopefully regain my hearing. 

My treatment plan started with a course of ear drops throughout the past seven days in preparation for today. This afternoon I'm having my outer eardrum debrided, which certainly doesn't sound pleasant although I'm assured that it isn't painful. I'm not looking forward to the procedure, but I am excited about not dealing with the constant ear pain that has been omnipresent since August!

The doctor speculated that the ear issues probably transcend the debridement, but hopefully completing this phase will be a move in the right direction. We are optimistic that the doctor will be able to further evaluate the structures once all of the "gunk tissue" is removed. Once he has a better view of all of the ear structures we will be able to develop a full treatment plan. I'm hoping that it is something that is easy to cure because I'm tired of dealing with physical maladies! 

Tuesday, January 09, 2018

Human Barometer

 Robby and Scott both went to school yesterday only to be released three hours later due to weather. While seemingly every other parent was up in arms with the decision, I was relieved with the decision. The mere thought of driving on icy roads puts me into a tailspin of panic and anxiety. I have definitely grown wiser and more respectful of weather as I am aging.  

With everybody home for an early afternoon, I surrendered my tidying ambitions for the day. Timmy was delighted with the sudden return of his Daddy and brother.  He quickly transformed every room into the Island of Sodor with trains and tracks in just about every space possible. Robby happily hopped onto the computer and Scott climbed into bed to watch television. Somehow everybody took the early dismissal as a vacation. Except for me, who was left juggling work reports with making and cleaning up after dinner.  Oh well, at least I didn't have to clean as well!

Delaying my post-holiday de-cluttering was probably a good thing. As the rain began to move into the area, my leg began to ache. Unfortunately, my body is the best barometer ever! I can predict precipitation and temperature fluctuations with more accuracy than the Weather Channel.  I wasn't in enough pain to keep me sidelined, but I was acutely aware of each step. 

Today the boys have a delayed opening. It is safe to say that they are quite fond of the harsh weather thus far. Considering that it is only the beginning of January, I suspect that this could turn into a very long winter for this Mom! Rest assured, I'll probably know when the weather is going to turn before the meteorologists.

Monday, January 08, 2018

Tiny Tantrums

What was supposed to be the first week back to school post-vacation quickly turned into an extended break for the boys. Both Scott and Robby enjoyed school cancellations on both Thursday and Friday, translating to a one day school week for both of them. While every male in the house was delighted with the unexpected vacation, I have to admit to being moderately frustrated. Typically I love snow days and having everybody home, but on the heels of a long Christmas vacation, all I wanted was for my house to clear out so that I could start to put it back together again.  Hopefully this week the weather will cooperate with my house purging plans!

Timmy relished having everybody home, although he wasn't thrilled with being held inside. He saw some snow Friday morning and wanted to play outside. As much as we tried to explain that it was simply too cold (a wind chill of -5 would not be fun for anybody), he refused to accept our answer. Much of Friday was spent by my walking around the angry mass of screaming toddler in my path. When I left a room he simply followed me, threw himself down again and continued screaming. If I closed the bathroom door he sat at the entrance and resumed crying as soon as I unlatched the handle. If it hadn't been so frustrating it would have been comical!

Saturday was a tad better. While I still wouldn't let him play outside, I did bundle him up to visit the Animal Park. We didn't visit the outdoor exhibits but instead he spent several hours on the indoor climbing structures and playing in the activity room. He enjoyed petting the chinchilla but was not amused when the zookeeper invited him to touch the snake. Suddenly my brave and fearless little boy ducked behind me and started to emphatically chant "no no no no snake." 

The zookeeper encouraged me to force him to touch the snake, but I opted against her recommendation. Scott and I constantly warn Timmy to stay away from snakes out of fear that he will encounter something wild in our woods. Since we seemed to make an impression, I didn't want to undo it by introducing situations where it is okay to touch something that we taught him may be dangerous. When he is older he will learn the difference between good snakes and bad ones, but for now I'm perfectly fine with his "avoid at all costs" reaction.

Today Scott and Robby are returning to school, finally giving me a relatively quiet house. Fingers crossed that Timmy the Terrible won’t construe the calm as an invitation to wreak havoc!

Friday, January 05, 2018

No Snow Day!

The phone rang yesterday at 4:45 in the morning, jolting me awake with a fright. Whenever the phone rings so early I immediately fear bad news. With foreboding panic I scrambled to answer, knocking over just about everything on my night side table as I tried to locate the phone in the dark. The phone ringing didn't wake Scott up, but my knocking everything onto the floor in my attempt to answer it certainly did.

It turns out that the call was not announcing bad news, but was a robocall from Scott's work informing us of the school cancellation. I was shocked that school was cancelled because when we went to sleep we were only forecast for a dusting of snow. Scott quickly fell back to sleep, content in the knowledge that he had won the vacation lottery. I had more trouble getting back to sleep and finally surrendered to being awake.  

Both Robby and Scott's schools were closed yesterday because of the extreme cold. It was certainly too cold to spend any time outside, even to just go to the car, so I was content to stay indoors. We kept the fire going all day and Timmy and I spent the afternoon baking to keep the kitchen warm. (Timmy was delighted to have everybody home again and was in a much better mood.)

Schools are closed again today because of the cold. I appreciate the schools calling off early Thursday evening, keeping me from the panic of a ringing phone obscenely early in the morning. It is forecast to be even chillier than it was yesterday. I have no intentions of leaving the house. Thankfully my baking pantry is fully stocked and I have a happy little baker to help me keep the kitchen warm. 

Thursday, January 04, 2018

Timmy's No Good, Terrible, Horrible, Very Bad Day

We've all been there at some point in time.  Just minding our own business when a little hellion of a child interrupts the tranquility with a whirlwind of commotion and destruction. Running through a store, throwing objects, or perhaps spitting are all triggers for most to leap to judgment. I understand that it is hard not to judge both the child for the conduct and the parents for raising such an unruly spawn. I know that I am guilty of having those thoughts when I have encountered a destructive child in public.

Unfortunately for me and for everybody we encountered, yesterday the hellion was mine. Timmy did not react well to his Daddy and brother returning to school. Between the change in our schedule and the shots that he received for his autoimmune disorder, he spent most of his day on a rampage of destruction. After spending the majority of my morning chasing him down, pulling him off of the counter tops and off of the tables and out of the refrigerator, I thought that perhaps he would calm down if he went to his favorite play area.  

To say that my decision to take him into public would be an understatement of monumental proportions. As soon as we entered the playground, he took off on a mission.  He reminded me of the Tasmanian Devil from the Looney Tunes cartoon. A tornado of mischief and destruction swirled around him, and he seemed to be oblivious to my behavior corrections. 

First he threw the fabric donuts into the air and used the toy rolling pin as a baseball bat, hitting the soft little toys throughout the play area.  He escaped my clutches and ran directly to the air tubes, where he promptly stuffed the rolling pin into the cloth only activity. I was able to redirect Timmy by encouraging him to bounce in the moon bounce. While he was busy hopping with other kids I worked on unclogging the tubes. 

I should not have turned my back. Apparently Timmy the Terrible took the opportunity to carry and spit out copious amounts of water from the fountain into the base of the moon bounce slide. I was horrified when the soggy kids ran out of the enclosure.  I made him sit on the ground while I cleaned up the liquid and then we promptly left the playground. Humiliated as I took my walk of shame, I carried a squawking kid out to the car without making eye contact. 

I would like to say that leaving the playground prematurely made an impact, but that would be a lie. His ill-behavior continued throughout the evening. He threw his bucket of trains down the stairs, ran from me while unspooling a new roll of toilet paper and stuffed a stick of butter down his pants. Soon after he threw a handful of spaghetti onto the cat, Scott and I decided it was time to throw in the towel and put him to bed.  

No matter what I did yesterday, Timmy was uncontrollable. While I know that much of his behavior was a reaction to his medication, it by no means makes his chaos acceptable. Hopefully today he will return to being my sweet little boy because I'm not sure that the house can survive another day with Timmy the Terrible on the loose.