About Me

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I am a below knee amputee. More importantly, I am also Mommy to two boys, a very active 10 year old (Robby) and an mischievous toddler (Timmy). I have learned that being a parent with a disability can create some unusual and sometimes humorous situations. This blogger is available for hire! Let's talk and learn how a blog can expand your business.

Thursday, March 31, 2016

Mood Lifter

Even though I was still feeling the funk of disappointment, I did my best to have a better day. When I wasn't working, I stayed as busy as possible by playing with Timmy. (Incidentally, he thoroughly enjoyed the nonstop attention.) As the day progressed my feigning happiness started to morph into actually feeling the emotion again. While I'm still bummed out, I'm no longer going to let the disappointment reign my moods. Onward and upward, I'm looking to the future instead of lamenting the past.

Timmy and I spent our time jumping on the trampoline and playing outside. I love that he now freely walks over to visit Mr. Bill. Timmy often walks right up to the front door and begins knocking on the window.  When his friend doesn't answer, he just starts yelling and screaming until Mr. Bill comes outside to play. The pair are forming a very different, albeit just as special, relationship.

Timmy and Robby are absolutely amazing mood lifters. It is impossible to remain downtrodden long when I am around them. Between Robby's inquisitive nature and Timmy's mischievous smile, I have so many genuine reasons to smile. When I look at my boys, all of the small setbacks in life feel trivial. 

Don't get me wrong. I'm still bummed out when I think about the setback, but I'm moving in the right direction.  When I'm not busy formulating a new plan to achieve the same goal I've been spending my time playing with the boys. I have a stronger, more empowered frame of mind about the situation. Sometimes the alternative route turns out to be the best.

Wednesday, March 30, 2016

Regrouping

Despite the return to school normalcy, yesterday was horrible. I received a call which absolutely knocked me for a loop. Afterwards I spent much of the day in a tear-filled haze. 

I tried to distract myself by packing up Timmy and heading to the farm. He had a blast running, hopping and playing. I tried to be happy, but I just couldn't shake my mood.  While logically I knew that this was not true, I couldn't help but feel like I had failed everybody, especially my boys.

I felt like I was existing in a fog, cooking dinner and playing with the boys like a robot. I went through the motions, feigned a smile yet wasn't really feeling anything. I desperately wanted to call my Dad, to seek his advice and to listen to his perspective. I felt his death profoundly yesterday, which was perhaps the final straw. By the time the sunset, I broke down sobbing. I ate half a box of peanut butter candies, two cupcakes and went to bed.

Today I'm feeling stronger and ready to tackle the challenges ahead. I am not sure what those challenges look like, but I will try to embrace the adventure and the journey. I have adopted a new mantra, and I'm ready to take on the world!


Tuesday, March 29, 2016

End of Break!

Because of the rain, cold temperatures and high winds yesterday, we made the decision to forgo the White House Easter Egg Roll.  I was sad to let the tickets go to waste, but the alternative of spending the afternoon schlepping a sure-to-be-miserable husband and mischievous and non-compliant toddler through the mud and crowds just wasn't appealing. Robby was disappointed but he quickly accepted the consolation prize of bowling with his friend Janna.

It turns out that skipping the White House was a wise decision. If we had gone, we would have been smack dab in the middle of a lock down and evacuation.  I shudder to think of the issues that would have arisen during that situation!

After 10 days of Spring Break, the boys are returning to school today. Neither Scott nor Robby are particularly thrilled with the end of their vacation. Although we had a great time and I thoroughly enjoyed having them home, I must admit that I'm not mourning the end of Spring Break. They may not agree with me at the moment, but we all need to get back to a routine. 

While I will enjoy the quieter house, I suspect that Timmy will not be as happy. He loves the commotion and excitement that ensues when his brother and Daddy are both home. Being stuck with just me for company, I'm expecting him to have some adjustment issues.  Hopefully some quality playtime on the trampoline, just the two of us, will help to soothe his separation sadness.  Hi Ho Hi Ho- it's back to school they go! 

Monday, March 28, 2016

Easter

We had a wonderful Easter weekend.

Saturday afternoon we packed up the boys and went to see the Easter Bunny. None of my boys (Scott included) was particularly fond of the notion of going to the mall to stand in a long line so that they could pose in front of a giant furry rabbit, but they all knew that complaining would be futile. I was determined to get my bunny picture, regardless of the complaints (or in Timmy's case screams of terror) involved.  I knew that Hamlet probably wouldn't relish meeting the giant bunny, but the terrified introductions are a rite of childhood I was not willing to bypass.  Needless to say, his reaction did not disappoint. 

Thankfully his fears were short lived and were calmed as soon as he noticed the large basket of lollipops propped up next to the bunny. He spent the remainder of his bunny visit snitching handfuls of lollipops out of the basket. Whereas Robby doesn't particularly care for candy, my little Timmy has quite a sweet tooth.

Sunday morning, while everybody else was still sleeping, Timmy spied a row of lollipops that had sprouted out of the jelly beans he planted last night. He couldn't wait to get outside to retrieve his little candy harvest. He grabbed the lollipops, looked at me with a cherub little smile and took off running up the driveway. He made it to the end of our road before I managed to catch him! (He was hastened out of fear that I was going to take back his treasured lollipops.)

In the afternoon my Mom, Sister and her kiddos came to visit. We went to an Easter Brunch and egg hunt. Corralled into the little kid hunt area, Timmy quickly grabbed four eggs (two in each hand) and took off running. He sprinted across the golf course, through the sand trap, and jumped into the water hazard while clutching his prized eggs.  He was giggling and squealing with excitement. I was not nearly as happy as I tried (in vain) to catch my little runner.  Being soaking wet from the knees down didn't seem to phase Timmy, and he continued to play without missing a beat. 

Today the Easter excitement will continue because we are headed to the White House for the traditional Egg Roll. I'm a tinge nervous taking my mischievous little toddler, but I'm hoping for the best. (If you see a story scrolling on CNN later this afternoon about a pint sized security breach, know that it was probably Timmy trying to protect his treats.) Wish us luck!







This is what happens when a toddler discovers that the Easter Bunny doesn't leave lollipops every night.  He was quite disappointed/ angry this morning!

Friday, March 25, 2016

Last "First"

I knew that all of the "firsts" after losing my Dad were going to be difficult. Yesterday was the first year anniversary of his death, meaning that I have now muddled through them all. Some "firsts" were easier than anticipated while some dates came unexpectedly out of the blue and threw me back into the spirals of grief. Despite the tears and emotional breakdowns, I survived my first year without my Dad.

Yesterday morning was difficult. I woke up crying and felt weepy until the boys awoke. After lighting a candle and shedding a few tears, I resolved to trudge through the remaining hours so that I could could the final "first" in the past.  I just wanted to stay as busy as possible so that my mind wouldn't remember.

The weather cooperated with my plan, allowing us to stay outside. Scott worked on the yard all day, transforming it into a child friendly oasis. The leaves, sticks and various junk (he did manage to find an old pitchfork while working in part of the woods) have been cleared, leaving flowerbeds full of ripe soil just screaming to be filled. 

While he worked, I played with Robby and Timmy.  Robby was feeling better from his surgery but I still wanted to make sure that he didn't overdo it. I made sure to keep him in sights as he played with his friends. (They are such a good group of kids. I explained the issues and limitations to them and each friend went out of their way to make sure that Robby was both safe and that did not become auditory overwhelmed.)

By the end of the day the yard was beautiful, the boys were happy and I realized that I was smiling. Not a forced smile, but a genuine smile.  Not wanting the day to end, Scott and I made an impromptu decision to throw a party.

We lit the fire pit, invited over the neighbors and hosted our first fire pit party of the season.  The kids were able to play into the night while the adults sat around the fire laughing and sharing stories. As I went to bed last night, I almost felt guilty for having had such a great day on such a solemn anniversary. Then I realized that I was happy, which is probably how my Dad would have wanted it. 

Thursday, March 24, 2016

Surgical Update

I have an extremely brave little boy. Although he was nervous about his surgery, he handled everything like a champion. He remained composed and polite despite his surgical anxiety. I could not be prouder of my little Koopa.

The surgery lasted longer than anticipated, which had both Scott and me on pins and needles in the waiting area. Robby's right ear (his bad one) had more scar tissue than anticipated during the pre-op assessment, requiring the surgeon to spend more time cleaning out the canal. The entire ear drum was blocked by debris. 

Robby's left ear also had significant tissue build up which needed to be scraped. It was discovered during the surgery that the debris had punctured through his ear canal, leaving him with a hole. I guess now we know why he has been complaining of pain. 

Because the surgery was more involved, my little guy experienced more discomfort last night than we originally anticipated.  Again, he handled everything like a little warrior. In a few weeks we will have his hearing checked again, but the surgeon is optimistic that significant hearing has been restored through the surgery.  Until then, we're going to encourage him to take it easy and let everything heal.


Wednesday, March 23, 2016

Surgery day

We are headed out to the surgical center with Robby. Last week we learned that he has lost more hearing due to the development of scar tissue in the eardrum.  The doctor recommended removing his tubes and scraping out the scar tissue to clear the drum.  While I know that in the scheme of things this is minor, I hate seeing my little Koopa have to endure any surgery!

Robby has been brave about the situation. He is worried about the mask, but other than that has remained fairly level headed. He even hinted that he plans on "playing his cards right and getting a large milkshake for dinner."

Wish us luck with the surgery. We are hoping that some hearing will be restored, and that the procedure and recovery will be pain free.  I'll post an update when we are home.